Gent perfusion

Thanks Joney! I did pretty okay.

I write a blog for my family and friends and it’s kind of my niche. I love to tell stories of MM and bring humor to even the crappiest of times. So it’s what gets me through.

I think because I’m doing daily drops that my recovery is a tad different then say Anne’s. But I feel like I should be feeling my worst now. But I’m actually feeling like I’m on the compensation side of things even though I’m still doing drops until 8/1.

But I do confess I worry it could mean it’s stopped working. So I guess we will see.

 

5 days Clare???

That seems awfully soon after a laby to be out doing that? Holy smokes!

 

You so brave!! Bada$$!

 

I feel like they are quite similar! Lol. It was so bouncy and awful. I was worn out for sure.

I do feel better everyday. But still struggle with stores and lots of movement or mowing the lawn. Hahaha. So I’m hoping it’s still doing it’s thing. I will do surgery but would really love to not have to. Fall is really busy for my family. Fingers crossed!

Today is day 14 and no vertigo or drop attacks thus far.

 

Today I’m out on the deck. Made it through target with my daughter today. No Valium so far. Just one meclizine (for Target). I think the daily drops is helping me recover quicker. Or they are starting to stop working. Been walking a lot! That might be helping too.


How are you? About to go see if you’ve updated!

 

Day 18. Doing okay. Drove a little today on back roads and places where I didn’t have to look around quickly. Felt good to be a bit more independent.

They have tentatively scheduled my surgery for 8/28. Except I signed up to be head coach for my sons baseball coach. And that starts 9/8. Yikes! Hoping I don’t need the surgery. I don’t know how I’d pull it all off.

No vertigo or drop attacks since day two. I get panicky moments still and have trouble with balance a lot and visual issues in certain places. But I feel like I hit my bottom around days 6-9 and have been compensating since. I stop drops after Thursday and see the doc on 8/7 to decide what to do.

I’m curious as to what the hearing test will say and what her opinion will be. If she suggests surgery. I’m sure I’ll do it. But just don’t want to wake up in vertigo and miss out on coaching. But I trust her.

Sigh. Many feelings of uncertainty right now.

 

Thank you. I have not tried it and it’s never been offered to me. Some friends in support groups here in the US have used it and did not help them. I wonder if the quality is different between here and Europe?

 

So today was a long day. No drops. Finished those up on Thursday. But lots of activity and now I’m overtired and feeling wonky. Like vertigo could come. Not to mention I’m stressed because we seem to have a bathroom leak according to the ceiling leaking water on the floor below. Great! Ugh!!

I indulged in some salty shit food as we were on the move and am freaking out that I’ll have an attack.

I just don’t know how to beat the anxiety that comes with menieres. Short of laby.

So I’m going to have a low sodium snack and chew some Valium and go to bed. The leak and the impending stressful expense will have to wait. Bleh.

 

Luckily the leak was an easy fix. The ceiling? Well the fiancé will handle that and save us some money. I think total it cost us $17.00 for supplies. So yay!!

I also have my appointment coming up to see if we are doing surgery or not. I’m torn on what to do. Part of me says just get it over with and pray your recovery is easier because of the gentamicin. The other part says trust the gentamicin. Which leads to anxiety. And then it starts all over.

Big decision to be made and want to do the best things for me. Just wish I knew what that was. I guess I’ll know when I know!