Gent perfusion

Whatever you decide to do I wish you the best. I do believe if you go forward with the laby you will have an easier recovery due to the gent. I understand your anxiety. After I had gent I was vertigo free for 8 months. Once they kicked back in I had the laby. I am convinced my recovery was relatively quick due to 12 years of MM and the gent. The monkey was finally off my back. If your hearing is gone and you still feel light headed and off balance and full of anxiety than the laby is the way out. Not for everyone but definitely a way out.

 

Hugs. I'm sorry that you are having to deal with an unsupportive partner on top of everything else.

 

Mind Over Meneires has a video titled "What it is really like to live with Meneires Disease". He made the video partially to explain to our loved ones what we experience. ❤️

 

I am so sorry that you are dealing with all the ugliness of MM and on top of it having an unpleasant conversation with your fiance. You will be seeing your doc soon and see what she offers in terms of waiting out the affects of the gent vs the laby. Do you think your fiance would be interested in reading some of the threads on this site so he might better understand what living with MM is? Anxiety is the worse (other than sitting on the bathroom floor holding onto the toilet while one pukes)....I hope the two of you can have a better conversation today. Will he go to your doctor's appointment with you? It might help. I am praying for you to have a better day. Peace.

 

Oh Saera your post made me cry. I am so sorry and have such empathy for your situation. The unknowns of this disorder we have makes it so evil ..especially when we have to worry about jobs and money. It is so much to deal with, for both the person with the affliction and a loved one who has to watch.
The only thing I can offer is to pray your fiance will come to a peace and understanding of the situation and have more empathy. Stay connected!...even though I know it may be difficult....but in between the dizzy spells. Blessings to you. Bonnie

 

I have not seen the video but wondering how a video could possibly convey what it's like to live with this nasty condition.

 

I felt so much anger towards the man when I read the post, and also so thankful that my husband isn't like that.

I became bilateral just a couple of months after I married my current husband. I told him that he didn't sign up for this, and if he wanted to end the marriage being that he didn't have all that much time invested in me, I was OK with that. He said that he understood that none of it was my fault, that he married me for better or worse, sickness or health, and that right now it was "worse" and "sickness" and that we would manage. And we have. I've been dealing with this monster a lot in the last several years, and as tired of it as he gets, he doesn't complain. He's retired so that makes things a little easier now.

 

I sure hope this documentary gets made. A big part of the problem is the lack of awareness and understanding, and the ignorance surrounding this vile disease.

 

This would be amazing. I was looking for a Virtual Reality depiction of what Meneire's sufferers experience. This sounds as close as it gets. It would also be good for health care providers to truly understand their patients.

 

The A/C simulation in the above linked video does not really simulate what I hear 24/7. Plus, my noise pulsates.

 

Thinking of you and praying for you Saera, and for your fiancé and doctor.

 

Also, I still carry Diamox with me, and take it when I eat restaurant food.

And I’ll probably always carry it, Ativan and gravol or meclizine... everywhere I go, for the rest of my life!

I still have low computer and fluorescent light tolerance. I wear TheraSpecs glasses for that, and they seem to help.

 

Did you see the doctor yet? Tell us more!

 

Good luck and 100 points for fiance driving you to your appointment!!