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Gent perfusion

Discussion in 'Your Living Room' started by Saera, Jul 11, 2019.

  1. Saera

    Saera Active Member

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    Pupper- that’s amazing. I don’t have hot flashes from hormones more like a crappy attitude. I bet a cold pool would cure that too though!

    Anne- last time I did VT I got physically sick. I function okay day to day but pushing myself in VT is so hard. I do still cheat and use Ativan or meclizine when I have a ton to do and know I’ll feel it.

    California- the pressure and tinnitus for me is usually a sign of vertigo coming. So that’s the biggest stressor of it for me. Waiting for the horror to start.... thankfully it hasn’t. I do still have the tube in my ear and that helps a lot. I can push on my ear and squish the pressure down. I do it a lot throughout the day but for me it helps. I will probably ask to keep the tube in there because I do find it helps. It was a simple two minute deal to have it out in. Some people call it a grommet. Maybe your doc would let you try it?

    Thanks for all the positive vibes. I feel like my hearing is improving. Which of course my anxiety rising becasue I fear it means the little hairs are growing back and I’ll get vertigo again. I swear short of a laby there is no escaping all the effects of this horrible syndrome.
     
  2. AnneT

    AnneT Active Member

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    Hi Saera
    Try not to worry about improved hearing. I read somewhere that a decent percentage of gentamicin patients get hearing improvements. They think it might have to do with the death of some other cells (shoot, I forget the name... but not the haircells.) that maybe contributed to the fluid issues in the inner ear.

    If I remember, or find it, I’ll post again. I think it was a Dr. Hains gem. I remember thinking, well shit, if they’d told me years ago that gentamicin had the potential to IMPROVE my hearing, I might not have waited so long.

    And oh take it easy on the vestibular rehab! Yow! Remember, just do enough to make you feel only 20% worse momentarily, then let it settle. Repeat until you get your 12-20 minutes a day. My physio said this is the amount is what was studied and shown to provide the best improvements.

    Yes I too still take the occasional clonazepam or sleeping pill.

    Easy does it, my friend!
     
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  3. Mac

    Mac Active Member

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    Saera,

    If you are already chronically dizzy... are you able to continue working through gent shots?

    Is it just more of the same dizziness...maybe a little worse?

    Can you drive?

    Thanks!

    Brian
     
  4. Onedayatatime

    Onedayatatime Active Member

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    Saera,
    I think I'm OK with the loss of hearing in my left ear because I'm so grateful the vertigo is absent for 8 weeks now. My acceptance may have something to do with age as well. Your young and should hope for and pursue restoration of your hearing if possible.

    K
     
  5. AnneT

    AnneT Active Member

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    How’s it going, Saera? Thinking of you!
     
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  6. Saera

    Saera Active Member

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    Update:
    Hello! I have been so busy living that I have not had time to update. I am doing well. I do have my moments where I swear vertigo will start. I get queasy and 'off' but no spinning. I still have tinnitus and fullness and pressure but I try to watch sodium and just keep living. I do drink caffeine now and that might be why I still have such loud tinnitus but I am trying to lose weight to prepare for my upcoming wedding. I hope every one is doing well!
     
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  7. redwing1951

    redwing1951 Well-Known Member

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    Good to hear from you! And great to hear that you are living your life vertigo free!!
     
  8. Onedayatatime

    Onedayatatime Active Member

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    Saera, That was always the same for me. It was like you had your ticket for the ride and were waiting in line.
     
  9. Bonlyn

    Bonlyn Active Member

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    So glad to see your post and read that you are able to enjoy life again. Best wishes with your upcoming wedding.
     
  10. Gardengal

    Gardengal Member

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    Yuck, you have a ticket for the ride and your just waiting. Isn’t that the truth!?
     

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