Has anyone looked into the ccsvi relationship or tried angioplasty?

Reading about it. Thoughts? Menieres being caused by insufficient blood flow away from the head?

 

https://www.ctvnews.ca/mobile/health/meniere-s-disease-and-blood-flow-could-there-be-a-link-1.3312503

 

Re: Has anyone looked into the cssvi relationship or tried angioplasty?

Maybe this is why some people find relief through cervical maneuvers? I’m talking about things far beyond my knowledge. Hopefully someone smarter jumps in. I do see the problem between this and the general efficacy of antivirals. They appear to be at odds. Even its implications in MS are complicated and work against successful immunotherapy treatment. Maybe. I don’t know. I do know if antivirals fail I’ll probably not have anything better to do than try to piece together the puzzle for myself. I don’t want to encourage any kind of malicious debating. We’re in this boat together. That said, some MS sufferers found partial relief from angioplasty.

 

If it is autoimmune, could hsv still be culprit? Or do those theories have to exist separately?

 

I just read in a clinical study angioplasty in MS patients did not yield significant findings. With similar incidence of lesions post study. So, maybe completely anecdotal.

 

If anyone reading this has had antiviral success, could you elaborate? Like explain in detail what happened? It’s silly, but a small part of me is stuck thinking, ‘maybe placebo?’. I mean no offense, just curious.

 

I know there’s significant finding pointing at autoimmunity or immunocological component in menieres due to some ... blood test thing that measured immune.. stuff. Maybe the body is attacking hsv in the ear? I dunno. I’m gonna read a lot more. If anyone can help me clarify or learn I would appreciate it immensely. Here’s an interesting detail about my case, I have seen others post about a draining feeling — I figured out how to provoke the feeling fairly consistently by elevating my head at an extreme angle while lying down. I usually glean a small amount of pressure release doing this. Of course everyone here probably knows of certain things they can do to build increase pressure. Like sleeping and waking up with a clogged feeling.

 

Okay. So the endolymphatic sac — which is the ear’s immune organ swells. This causes the rest of the structure to swell and then you get menieres symptoms. That certainly sounds immune-related unless there’s some abnormality causing weird flow.

 

Another thought. This began at the same time I started experiencing muscular twitching. This is often called, ‘Benign Fasciculations’ and long hypothesized on hypochondria boards (lol) to be caused by HSV. It’s peculiar I should develop both at the same time in my life? Maybe this really is caused by HSV. I’ll certainly love to find out it is and find success with antivirals.

 

Well. Guess I'll try them all. See if my neurotologist will put me on a consistent antiviral, for starters. I know this also coincided with a jaw dislocation (and stress, and HSV exposure, and recreational drugs -- though I really assume the latter had little to do with it in isolation, but rather precipitated the jaw dislocation). I know my cervical spine is whack. The ringing is highly influenced by jaw position (yawning, clenching, moving my neck). As hard as it will be, at least I have places to begin.

 

I know I have limited range of motion in my neck and my shoulders are sensitive. Doing all of this already seems overwhelming, but ... so is doing nothing.