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How long to develop

Discussion in 'Your Living Room' started by Jim, Mar 12, 2019.

  1. Jim

    Jim New Member

    Mar 1, 2019
    HI all! I have 2 questions: #1) How long can a person have the symptoms of dizziness and balance problems before you start getting the vertigo with nausea? I have had problems with my balance for a few years, which has been getting worse and worse. I also have some cognitive problems, as well as a litany of other issues, but there isn't time to go into all of that here. Anyway, a few days ago i was seen by an ENT doctor and he said he thinks I have Meniere's disease. I have had an MRI of my brain (done several months ago) and was then sent to a neurologist (well before i started having the vertigo with nausea). The neurologist looked at the MRI of my brain, asked a bunch of questions, and then asked me to walk down the hall without my cane. After that she referred me in to have a cisternograhm. She said something about having too much fluid around my brain. There was also some white spots, I think they call lesions, on my MRI. Anyway, I just saw the ENT (it takes a while to get into see one when you have crappy insurance) and the ENT thinks I have Meniere's disease. I have to have a hearing test to confirm but I can tell the hearing in my left ear is much less than my right ear. In any event, I have had the problems with balance for years, and have had several bad falls, including breaking my arm. I guess I am wondering if it is possible, if anyone here has had anything similar, to having just the balance problems caused by meniere's disease for years? And then develop the vertigo/nausea. In other words, is it possible to have the balance issues that I have had for years, then start having the vertigo/nausea years later? The ENT doc doesn't think so but since they don't know the cause, I am wondering if anyone knows if that is possible? According to the ENT doc, the more likely answer is that the whatever the neurologist will find is ON TOP of what is causing the problems with my brain. Incidentally, the ENT did a bunch of tests to make sure my symptoms are not being caused by an issue in my brain/stroke, etc. Question #2) I posted here a few days ago and I can't remember my user name or what my exact question was. I did get one response, but i can't remember. Is there a way to search/find out my info? Thanks in advance to all who offer help and advice!
  2. Bennyhill

    Bennyhill Member

    Feb 15, 2019
    Menieres begins with dizziness and balance issues. You often begin with getting out of bed too quickly and find yourself staggering. Eventually the dizziness becomes vertigo and that causes the nausea leading to vomiting.

    I had Menieres for 7 years before diagnosis and went from attacks every 18 months to monthly then almost weekly. I am now free from Menieres for almost 9 years by taking two vitamins.

    Please read my post "The Cure for Menieres Attacks" in this Forum for details on how Menieres attacks the inner ears as well as how you can stop Menieres with just two vitamins.

    All I ask is sufferers try them for a month to see effects. In you case as a "beginner" you should feel better in a week. The dizziness will eventually go away.
  3. cinda89406

    cinda89406 New Member

    Mar 12, 2019
    I have also just seen an ENT who thinks I have menieres. I go today for a hearing test and a VNG test. I began having symptoms in 2004 of tinnitus first then the "spells" of feeling unbalanced. I always dispute the term "vertigo" because the room does not spin for me. I feel like I am floating on the ocean. I literally feeling like clinging to a bout or on a cruise in rough seas. I have never tended to get motion sick, loving carnival rides and roller coasters, I did not get a weird feeling feeling at heights. I also did not experience nausea during these first episodes. Over time, and usually before the doctors finished all their tests the symptoms subsided. I often simply felt as though I was tipping sideways, because it appeared the room was making a 180 degree shift and I would think, "oh my! I'm falling sidewise." But as soon as I would reach out to grab hold of something, everything oriented properly. No nausea, no spinning, no blurring, no nausea. Just that stupid whooshing and ringing in my ears. Sometimes at first, looking back now on medical records I would have confusion, even driving all the way home and then not remembering most of the drive. So to answer your first question, I have been having theses symptoms off and on for 15 years. Every time going through every test there is to eliminate immediate life threatening issues and then to the MRI, cardio, EEG, balance, walking, MS (all except the lumbar puncture, which I will never let them do). Each episode has lasted a little longer and been more intense. The last one was in November 2015 and lasted into February. Weirdly enough this one started October 2018 and while exacerbated and dibilitating symptoms have once again subsided the tinnitus and sudden "room shifting" and floating is only occasionally. The ENT and what I have read mentioned stress can be a factor. I teach and that end of year can be a stressful time for all. I am going for a new brain MRI because this new neurologist wants to compare to the 2015/2016 one because mine also showed white spots, but at the time I was told "could just be normal aging". This was the first time a neurologist told me however that my EEG showed "depression , but you probably knew that." Which I found interesting because I have suffered from depression and anxiety my whole life although I use diet and exercise to alleviate that rather than medicate anymore. But that's another issue. Only now do I rarely get a slight nausea when the floating feeling comes on, but as soon as I grab something and tell my brain to get its act together the nausea passes quickly. One more thing, the neurologist had me on meclazine to fight the floating feeling, and the ENT immediately took me off. He said the brain will work hard to fix itself and the meclazine masks the real problem so not helpful. Although I did feel much more steady on my feet when using. He has me taking a diuretic now. Too much info I know, but at tleast this forum has giving me a voice and maybe others can related because I have spent 15 off and on telling people, friends and family how I feel when these spells hit and then go away feeling a little crazy. Especially when they spells subside and bunches of money spent finding out nothing.
  4. Jim

    Jim New Member

    Mar 1, 2019
    Thanks everyone! For many years, I have had the lack of balance, especially when I would get up in the morning. It seemed worse in the mornings, but in truth I had problems throughout the day. Either way, I was always bouncing off things/grabbing walls, dressers, counters, etc, to keep from falling. It sometimes feels like my head is to heavy and as a result I lean/tip over. I also had these moments of dizziness, sometimes where I felt I had just gotten off the merry-go-round. But normally they would end after a few moments. I figured the dizziness was caused by my blood pressure issues and the balance issues were because of my diabetic peripheral neuropathy (both feet). In any event, although a few times I would feel a little nauseous along with the dizziness, I really started having hard-core vertigo with vomiting last year. I have had the ringing/buzzing in my ears for many, many years but my hearing in my left ear started getting worse only after the vertigo/nausea/vomiting attacks started.

    Since my neurologist says the MRI shows that I have to much fluid around my brain, she ordered the cisternograhm, which is a medical way to make a spinal tap even more excruciating. Not only do they take fluid, but then they inject radioactive crap into your spine. Then they scan you over the course of 2 to 3 days. Not looking forward to that, but like I said above, the ENT doctor thinks that my meniere's disease is on top of/in addition to whatever else is going on. Just Great! Either way, there is no cure for meniere's disease, nor is there likely to be much they can do for the rest of my issues. Whoever said growing old is the golden years doesn't know the difference between Gold and a pile of poo!

    STEVEV New Member

    Mar 15, 2019
    Jim & Cinda your symptoms are what I'm currently experiencing. I will see ENT and Neurologist in the next 3 weeks. I expect to go down the same bump road that you have experienced, nothing to look forward to.
    Recent CT scan & MRI of Brain has shown nothing at this point only to negate a stroke. I not sure if MD is what I'm experiencing.
    The medication i'm taking contains similar ingredients as B6 and I have had some tiny improvement with the vertigo after 3 days, the doctor has only prescribed this 3 days ONLY so i take the last tablet tonight.
    But I am definitely going to try B5/B6 tomorrow morning doses to try and reduce or eliminate the vertigo.
    I will post my progress in the 7 to 10 days and hopefully my symptoms are gone before my specialists visits.
  6. teesdale

    teesdale Member

    Oct 24, 2014
    Jim, sorry to hear that you are having problems with balance. I believe this disease (or its symptoms) come in many shapes and sizes. I do not recall having had any previous balance issues 30 years ago when my first vertigo attack hit and landed me in the ER. I then went 25 years with off and on vertigo along with tinnitus, fullness, and hearing loss. Then five years ago I started with frequent disequillibrium but no vertigo. To tell you the truth I'm not sure what's worse. With vertigo, it was severe for a day followed by a day of tiredness but then I moved on for weeks or months with no Menieres. With the disequillibrium, it stayed with me for weeks on end and was more disruptive to daily life. In either case, it sucks.

    The other thing you mentioned with your MRI has me concerned about the quality of your doctor. In my case, I had an MRI 20 years ago which showed an arachnoid cyst about the size of a softball on the left side of my brain. My general practioner told me that was my problem. I waited two months to see a brain surgeon who told me my vertigo attacks had nothing to do with that cyst. In his words, "Any first year medical student can tell you that balance is unrelated to the left side of your brain." He told me to go to and ENT and I was finally diagnosed with MM. I only mention that because you may want to make sure the person reading your MRI actually knows what he/she is talking about.

    I cannot help you with question #2 but Solari is responsible for this fantastic site and I'm sure he would be more than happy to help you.

    Best of luck.
  7. tmcmahon2

    tmcmahon2 Member

    May 9, 2015
    They take a MRI or CT to make sure you don't have a fistula. If it showed that there's something there and they didn't do anything about it ... find a good lawyer.

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