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Discussion in 'Your Living Room' started by Brother_of_Nool, Nov 12, 2019.
Those who've had it for awhile: did it get to the point where you don't think about it?
12 years in.... it actually gets worse with time. The symptoms stop taking breaks. They are with you 24/7 so unfortunately I’ll tell you the answer to your question is no.
Is that even with Meds? Have you ever taken betahistine?
Coming up on 30 years, there have been times where I haven't thought about it for months. Unfortunately, it has a way of coming back and sometimes with a vengeance. It's all I think about the last five months.
Dario, I have never tried betahistine. Have you had sustained relief from it?
Yep. I haven't had an attack since February. A slight dizzy spell here and there but nothing that is not manageable
I'm going on 27 years now and yes, there are times I've gone for YEARS without a major episode and yup, I for sure wasn't thinking much during those times. I was living my life!
I stepped away from this forum years ago, after being an active user, because in between episodes, I just don't think - or want to think - about Meniere's. I mean, it's there but it's not front of mind. I take my meds and exercise and try to eat healthy and avoid triggers - I just live my life.
I come on here when I need support, which is when I imagine most users do, so remember -- there are plenty of our compatriots out there not posting because they're feeling good and not thinking about it. Remembering that this is an episodic illness gets me through the tough times. There's no reason to think this episode will be any different - as awful as it is now, I know it's going to end because they've always ended. Just hang in there until it does.
No, and I've had it for almost 50 years. Even during the times it's been in remission, it's always in the back of my mind that it will rear its ugly head again at some point.
I think about it all the time. I'm not sure how I could not think about it since I'm on a modified JOH regimen. And even though I haven't had a major vertigo attack in three and a half years, my tinnitus is a constant reminder.
I think about it all the time because the symptoms are always there...constant disequilibrium, tinnitus. But here's the thing I always know that I will figure this out or something will lend some relief. No doubt.
It's good to have a positive attitude. When my symptoms lessen, I always get hopeful that I've turned a corner or that something that I'm doing is having an effect. Is it the same for those of you who have been dealing with this for decades? Do you still have hope that your hearing/balance/etc will be "normal" again.
Never give up hope. We don't know when someone just might find the answer to this syndrome. Never give up.
I have no hope that my hearing will ever be normal again, especially considering that it has become worse over the last few years and that I am now in my mid 60s and that no one's hearing gets better with age, even if they don't have Meniere's. I do always have the hope that the other symptoms will go into permanent remission and not bother me again, but realistically I know this is very unlikely to happen.
Every f#%*g day.
Lol Anne. +1
Like others have said, I think about it less frequently when symptoms have abated for a while. I've had 3 rounds of gent shots, and that usually makes attacks less frequent for 2-3 years. Last time before the gent shot, I was despondent and thinking about it constantly, as the drop attacks were stopping me from doing just about everything. It seems to go in cycles and just gets bad sometimes. I've had this for 13 years, and have finally stopped hoping it will 'just go away.'
Unfortunately everyday no matter how good I feel.