I thought the antivirals were helping me..

I have relapses on avs. Usually it means your system is be weaken by something else, allowing virus to flare up. Go back to 3000mg until you feel better. Did your pharmacy change brands of your medication? Hang in there. Sorry about your set back.

 

Once or twice a year. They usually last one week. They are never as bad as when I wasn’t on av. I have been pregnant 3x while on av and I have had 6 weeks long flares each time. I think pregnancy is an immune suppressor so I think maybe that’s why? You’ll have to be the judge of what happens with you. I keep a log. I have for 4 years. I record the bad days. I can look back and try to see what was going on, how long the flares lasted, what times of year they happened, etc. It’s helpful and it encourages me to see that the bad times don’t last forever.

 

Meniere's is pretty random, but the attacks generally increase in frequency, in starts and fits, the longer you have it. But, as some recent posts have noted, there can be environmental factors like barometric pressure that can play a role. And stress, too. Some people say the vertigo will "burn out" over time, but that wasn't my experience. With any treatment, it's difficult to make a cause-effect relationship since the attacks are so random. I found it helpful to accept that I won't be able to control it, won't know the cause, and just have to deal with it on a day-to-day basis, relishing any good time I got. Eventually I had to change careers to something I could do from home. Then even working from home became impossible. When the attacks progressed in frequency to the point of life not worth living, a labyrinthectomy restored me and connected me with the world around me once again. Life is so much better now.

 

Hi Dnrpn,

It sounds like the anti virals were working but the dosage was lowered. With the anti viral approach that many of us take, we are not getting rid of the virus we are suppressing it. The longer you can stay on 3000 mg the better. For me , I stay on 3000mg I do not taper, plus I take JOH regimen. I do not see a benefit to tapering the dosage. I get blood work once a year, and the doctors have not found anything.

I hope you feel better soon.

Blake

 

Great summary, Jon. Really appreciate it.

You mention number of pills of monolaurin but not specific dosage amounts. Are they pretty standard? I started on monolaurin two weeks ago and have been taking 2 pills per day. 2 pills = 1 serving =990mg. Are you saying to work up to 6 pills per day (i.e. 3 servings)?

 

Excellent plan!!!!!!!!!!