It's a good idea but I think you need a famous person to sponsor it or it won't get any attention. I'd do it.
I think people are already getting tired of the ice bucket thing and it would not work a second time.
I'd be willing to do just about anything to bring more attention to Menieres to help find a cure. So many television personalities are participating that this would be the perfect time since it is still getting so much publicity. They did it on our local news channel just yesterday with reporters accepting the challenge. On Big Brother last night Julie Chang had a bucket poured over her on live TV. Her husband, who is a producer took the challenge and he challenged the set of NCIS to take the challenge. It is still very active.
It is active for ALS, a disease that is 100% fatal, usually within 4 years. I dont think starting a new one with an asterick that says it is for menieres this time, would work. It would be confused with the original and the surprise value would wear off. I think menieres needs its own unique approach identified only with it.
I have a golf tournament every year where my friends and some business associates play golf and make donations fora week at my lake house on Lake Keowee. We donated just over 7k last year to Dr. Della Santina and his vestibular lab at Hopkins last year for his vestibular prosthesis. I know it small, but best to things in your community. Have bake sale or something.
Maybe a 5k walk in a tutu? We need to be noticed, we are so invisible! And I don't even know if there are any centers where they are researching us. I don't think people realize how much our lives are ruined because of this. I have a pretty good life but a lot of my dreams went by the wayside....
It will be very difficult to get people to pay to participate in an MM cause race because most have no idea what it is. 5Ks usually cost around $30 and they give you goodie bags with post race snacks, a T-shirt, discount coupons to local stores. We would need some sponsors who can pay for all this and I'm not sure who would put money into this. It's a good idea, Sally, but it will take a lot of work to make it happen. Who would the money go to?
I've always donated to ASL and my job prevents me to do it. I've privately sent FB pm's, thanks for the challenge, send them the link, but they still fuss. I'm fed up with it.
I'm just trying to get a conversation going. I don't know where it will end but don't you all want some research done on this? I know I would like to feel better. I've been sick for a very long time.
Are there any research facilities in the US doing any studies or research on MM as far as you know? We could all send letters. That's something everyone could do. Or is there so,emplacement we could send letters to bring attention to MM? I've seen short segments on, "The Drs." Show but not much information. Our local News station does a medical report almost everyday. I wonder if news stations would be a place to start.