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Is this the "normal" course?

Discussion in 'Your Living Room' started by Susan Weaver, May 20, 2019.

  1. May 20, 2019 #1
    Susan Weaver

    Susan Weaver New Member

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    Nov 27, 2015
    Western Massachusetts
    Hi all - I've had cochlear hydrops for 6 years now. No vertigo, but I've had 8 episodes over 6 years of loosing my hearing in my left ear, aural fullness and screaming tinnitus. 4 of the attacks were in April, May or June and the others were in Aug, Sept, Oct, Nov. My ENT suggested allergy shots and since I started them I only had one attack in May of 2016 and one in June of 2018. Until now......

    My first attack in a year started on Tuesday last week. Still going strong although for two days it felt like it cleared up and then came back which is a different pattern for me. I am supposedly allergic to trees, grass, mold, dust mites and dogs (even though I have had dogs for 30 years) . On Monday night I slept with our new puppy because she was spayed and didn't like her cone of shame. Tuesday my first attack in a year came. But it is also allergy season. I also abandoned by salt free diet about 6-8 months ago because I felt so good.

    I'm six years into this and I have questions no ENT/Allergist seems to know the answer:

    1) Is it allergies that are causing this? Is it my dog? Am I doomed to never have a canine companion? Or is it random and there is no pattern?

    2) Will it get worse? Will this progress to vertigo? Will I permanently go deaf in my left ear?

    3) Will this progress to my right ear?

    4) In addition to allergy shots, should I try antivirals?
     
  2. May 21, 2019 #2
    Fisherman42

    Fisherman42 Active Member

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    Sep 5, 2014
    Illinois
     
  3. May 21, 2019 #3
    Fisherman42

    Fisherman42 Active Member

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    Sep 5, 2014
    Illinois
    Hey Susan I kinda screwed up that last post but expand it and you'll see my response below June's post. I attach it here again just in case. Fisherman.

    Hi Susan nice to meet you. I have found relief with allergy shots and I don't try to avoid things I've just gotten used to the "bad" times of the year and just manage with medication. I worked with my allergist and I take Monolkast (singular) at night, Allegra and Sudafed (the little red 4 hr dose pill) in the morning, and alternate Flonase and Azelastine as needed twice a day normally morning and night but take a shot at noon if its a really bad day. Unlike you I did have vertigo attacks along with all of your symptoms which led me to the JOH regiment and Antivirals which eliminated the vertigo attacks and greatly reduced the others. The JOH (John of Ohio) regiment is a great place to start it is supplement based and you can get all of the supps online I would look into it. As far as Antivirals go if you could get your doctor to prescribe them you could see if they help it took a while for them to work on me so it wouldn't necessarily be a quick thing. My MM started out as only fullness and ringing at first then kicked in to vertigo I know some people here just have the CH without the vertigo and AV's have helped. June (one of the members on this site) I believe has eliminated her CH with Allergy shots and AV's maybe IM her she may be able to explain better. I tried to add a great quote she used in one of her posts regarding allergies it hits the nail right on the head. I tried to attach it I hope it worked.
     
  4. May 22, 2019 #4
    Susan Weaver

    Susan Weaver New Member

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    Nov 27, 2015
    Western Massachusetts
    Thanks Fisherman - I appreciate the reply. You said your MM started out as only fullness and ringing at first then kicked in to vertigo - how long was it from the time of your first symptoms to your vertigo? I'm wondering if it always progresses to vertigo or whether there are people out there that only have CH forever. This the first attack I've had of all my attacks in the past 6 years that has lasted this long and has had so much fullness - all my other attacks ended after a week but this one feels very different - like a low grade fullness rather than a full blown aural fullness and of course raging tinnitus and low frequency hearing loss.

    I'd love to hear from anyone on the forum who experienced CH and no vertigo at first or only ever and find out what their progression was like. It is frustrating when I talk with Dr.'s and they don't seem very concerned when its only aural fullness and tinnitus and hearing loss - it seems like they don't take it seriously until you have vertigo. I am very fortunate not to have experienced vertigo yet but the other symptoms, while not debilitating, are difficult to manage.
     
  5. May 24, 2019 #5
    California Sun

    California Sun Active Member

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    May 23, 2019
    They can't give you any definitive answers because they don't have the answers to give you. They can only give you an educated guess based on what they do know. This disease is so variable from person to person there is no way to predict what will happen in any given case.
     
  6. May 26, 2019 #6
    Jimii

    Jimii Member

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    Apr 10, 2019
    Susan,

    I am not entirely sure what you mean by attacks?
    For me, the ringing and reaction to sound (buzzing in the ear) started about 18 years ago (at age 32).
    Ringing has been constant, non-stop for 18 years, and is quite loud. The buzzing comes and goes and is terrible and torturous.
    Went to a specialist about 3-4 times when this started happening. Had some hearing loss but nothing crazy.
    Told my mother about it and she informed me that my grandfather had Meniere's.
    Stopped going to the specialist until now.
    Had my first 2 vertigo attacks last month (approx. 4 hours each). I have basically ignored the issue until now.
    In fact, I don't have an official diagnosis. (See the new Dr. on 7/10, other guy retired)
    Went for a hearing test two weeks ago. Moderate to severe hearing loss in the right ear. Left is perfect.
    I have had hundreds, probably thousands of short vertigo episodes (less than 10 seconds) over the last 18 years. I just ignored them.
    The four hour ones are hard to ignore, but I always knew they were coming.

    My situation may not be typical, but that is what has happened to me.

    Jim
     

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