JOH and other things

Discussion in 'Your Living Room' started by forevergrateful, Oct 5, 2017.

  1. forevergrateful

    forevergrateful Member

    145
    0
    16
    Feb 24, 2017
    I recently had to revisit the regimen to check on dosages when reordering components. I have been following this approach along with AVs since last Feb. It looks like I missed the Beta 1, 3 glucans part of the regimen all together. I guess I'm asking if adding it now would help in any way. As a side note, I recently added Betahistine to my daily course of treatment. Am now up to 32mg 3x daily and have been instructed to add another 16mg (48 total by next week). Is there a consensus that adding the Beta component would be an additional aid?
     
  2. John of Ohio

    John of Ohio Active Member

    843
    161
    43
    May 17, 2014
    No, I removed the beta-glucans from the regimen some time ago. There were no reports that it improved results at all; no useful need to take it, then. Not harmful at all; can improve immunological function. But not a useful thing for Meniere's.

    The rest of the regimen is retained, and continues to provide relief. Check the most recent version of the regimen here:
    http://www.zoominternet.net/~kcshop/JOH.pdf
     
  3. ckdk

    ckdk Member

    122
    0
    16
    Jan 8, 2017
    John, is there any alternative to lysine? i tried to take 500mg/ day and it causes some rashes and acne to me. so currently i only took lemon bioflavanoid, vinpocetine, ginkgo, vit c and add magnesium.

    thanks.
     
  4. John of Ohio

    John of Ohio Active Member

    843
    161
    43
    May 17, 2014
    I know of no other over the counter substance that can stop herpes virus activity. Prescription antiherpetic drugs the only (and recommended) alternative.
     
  5. scott tom

    scott tom Active Member

    1,158
    5
    38
    May 14, 2015
    It might have been fillers or something in that brand. Try a different brand?
     
  6. ckdk

    ckdk Member

    122
    0
    16
    Jan 8, 2017
    thanks John. I will continue with acyclovir then.

    I've tried 3 different brands and all gave the same reaction. regards
     
  7. scott tom

    scott tom Active Member

    1,158
    5
    38
    May 14, 2015
    That sucks. Sorry to hear that.
     
  8. Dancolvin

    Dancolvin New Member

    3
    0
    1
    Jul 1, 2017
    I had the same reaction and cut the dosage by 500 and switched brands. Have not had an issue since, been taking it about 3 months. I use the brand recommended in the regimen.
     
  9. John of Ohio

    John of Ohio Active Member

    843
    161
    43
    May 17, 2014
    Actually, there is one supplement worth trying, to substitute for the lysine. I should have recalled this before.

    It's olive leaf extract. There are claims that it is antiviral. Whether it can actually suppress herpes viruses in the inner ear is, to me, unknown. But the stuff is relatively inexpensive, and has other health benefits.

    https://www.vitacost.com/vitacost-synergy-olive-leaf-extract-standardized-500-mg-120-capsules?q=olive+leaf+extract&ta=oliv

    This site claims OLE can cure herpes infections:
    http://www.herpescure9.com/natural-herpes-cure/olive-leaf-extract-herpes-can-olive-leaf-extract-cure-herpes/

    --John of Ohio
     
  10. ckdk

    ckdk Member

    122
    0
    16
    Jan 8, 2017
    thanks John, i'll try if i can find this vitamin locally. btw what is the dosage? in your link above, the dosage is "TAKE TREE TO FOUR 500 MG TABLETS EVERY SIX HOURS BEFORE OR BETWEEN MEALS. THE RECOMMENDED DOSAGE IS ONE TABLET EVERY SIX HOUR, BUT, ACUTE INFECTIONS LIKE HERPES REQUIRE MORE."

    do we need the same dosage for MM?
     
  11. John of Ohio

    John of Ohio Active Member

    843
    161
    43
    May 17, 2014
    I would presume a tablet QID (one, four times a day; that's one every six hrs) would be worth trying. But, I'd start with just one tablet for a day or two, then two a day, then three a day, etc. To see if you have any side effects, such as diarrhea. A Meniere's herpes infection is chronic, not acute. I'd be reluctant to be popping 24 of the tablets or capsule each day. Seems that would be overkill; might knock back healthful gut bacteria.

    Nothing knocks down herpes infections with any haste. The viruses simply replicate slowly; respond slowly to any antiherpetic therapy, whether lysine, antiherpetic drugs, and probably olive leaf extract.

    Again, no posted information or experiences for OLE against Meniere's. Good evidence that the supplement does suppress herpes infections. For those wishing to experiment, keep us posted. Always good to discover alternative therapies for Meniere's.

    --John of Ohio
     
  12. Onedayatatime

    Onedayatatime Active Member

    372
    74
    28
    Nov 22, 2016
    Been on JOH for almost a year now. It took a while to find the sweet spot on how much Lysine I can tolerate due to GI issues. I am at 2000 per day.

    Trial and error, then success.
     
  13. Pupper

    Pupper Well-Known Member

    1,002
    74
    48
    Oct 15, 2016
    John, what's it like to be famous? Do you have groupies? Like, sickly groupies showing up at your door? Also where in Ohio are you from? I'm from Toledo.
     
  14. John of Ohio

    John of Ohio Active Member

    843
    161
    43
    May 17, 2014
    Famous?

    Hardly.

    I'm in the Sandusky area, and have no desire to be known as the originator of the John of Ohio Meniere's Treatment Regimen. ( http://www.zoominternet.net/~kcshop/JOH.pdf )

    Mixing personality or celebrity (for what those are worth, very little) with the regimen would merely complicate, even diminish it's usefulness. For all parties, for Meniere's sufferers, for their care givers and medical professionals (and for me), it's best that the regimen be considered solely on it merits, not on any sort of flashy advertising or celebrity sort of connections. I strive (so far, successfully) to keep my name unattached to the regimen.

    I've had a few offers to take the regimen commercial, where some professional (read that as entrepreneurial) entities have wanted to package the regimen stuff and sell it. I do not accede to that in any way. That would just make the use of the regimen more expensive, and would also tip it over into the muddy vat of online "cures." (“Send us your $35 right now, and we'll send you... bla, bla.”)

    Actually, my identity will be revealed in an autobiographic book I'm writing, dealing with five decades of quite remarkable and interesting professional experiences (most of which are unrelated to Meniere's in any way). As mentioned in the regimen write-up, I'm a biologist; so I have a rather deep understanding of human physiology, anatomy, and biological matters related to Meniere's and the inner ear. As it happened, I've also discovered a number of other alternative treatments for medical conditions I have. I feel compelled to tell their stories in my retrospective (won't be out until some time next year — about 75% written so far, with the Meniere's story yet to be told).

    Now this could go on for a big chapter or two (as it will, in my book). I'll present this segment for the purpose of affirming panoptic views of potential medical treatments. Presently, for the most part — very understandably, and with good concerns for safety and efficacy — most medical treatments are from medical professionals. Off the street (well, off the Internet) "treatments" and "regimens" — including mine for Meniere's — are widely held to be either/or risky and dangerous.

    I contend, as I learned with my formerly debilitating Meniere's, that conventional medicine does not have the entirety of knowledge or perspective on many human diseases. To limit one's understanding to conventional medical practice and professionals, in many cases, keeps one from experiencing useful and safe alternative approaches; as in the case of my regimen.

    Here's a personal example. Earlier this year, I was rushed to the local hospital in great distress. I was discovered to have sepsis, a system-wide bacterial infection. Without the local hospital's ICU care, and a just super team of doctors, I'd be dead right now.

    The ICU period worked. I slowly recovered. But something was wrong with my blood. A test showed it was hyperviscous (too thick), with excessive white cell chemicals. I was diagnosed with Waldenstroem's macroglubulinemia, a rare B-cell lymphoma of old white guys. The oncologist, an acquaintance and thorough professional, said that there were two or three chemicals that could treat this leukemia. For several thousands of dollars (paid mostly by my insurance) the drug would be dripped through me for a day or so, it would make me really sick, but would, for a time, “wash out” the bad blood cells. I’d be Ok, for a while. As the disease progressed, I’d have ever more frequent chemotherapeutic knockouts — then, I’d die.

    So, I checked all of the info on the Internet, and discovered a German medical paper (peer-reviewed, legitimate) that said my lymphoma, in most cases, can be well-controlled with a daily capsule of resveratrol. I was aware of the biology of this powerful antioxidant. It’s in red wine and is probably the main substance accounting for the health benefits of the “Mediterranean Diet.” I emailed a copy of the paper to my friend, the oncologist. He said, “Give it a try, no harm with it. We’ll just watch things; will use the chemo when necessary.”

    So, I started popping a $0.66 a day capsule of trans-resveratrol (from Vitacost). A month or so later, right after a blood panel test checking on the progression of things, I got a call from the cancer doctor. He said, “John, the blood cancer numbers are off. Something happened.” I reminded him of the over the counter stuff I started taking, and the German medical paper I sent him. “Well, keep it up. You’ve got that cancer completely under control.”

    My point? When diagnosed with a disease or condition, such as Meniere’s, or cancer, search diligently for alternative approaches. There are many, that work (as with my Meniere’s regimen). Work closely with a medical professional, of course. But don’t limit yourself to just the things in medical textbooks. Today, there are greater, often more successful options.

    I’ll be writing about all of that at length in my book. For now, I’m just “John of Ohio.” Quite sufficient. Good enough.
     
    • Like Like x 1
  15. forevergrateful

    forevergrateful Member

    145
    0
    16
    Feb 24, 2017
    "Famous" or not, you're a true hero to so many of us. I, for one, am so appreciative for the work you've done to help us. Thank you for sharing your information and insights.
     
  16. ckdk

    ckdk Member

    122
    0
    16
    Jan 8, 2017
    thanks John for sharing your regiment with us.
     
  17. Mac

    Mac Active Member

    355
    59
    28
    Oct 23, 2017
    John,

    I have had Menieres for 9 years. I am currently enrolled in a clinical trial SPI 1005.

    It end next week. As soon as it end I am starting your regimen. There is no doubt that my Menieres is caused by a virus. it makes me sad that it has taken this long to find this but better late than never!!

    Just wish I never had the end-lymphatic shunt surgery. Oh well..I am very excited to try it!!

    if anyone has any inquiries on the clinical trial - reach out to me....best of luck to all!!

    Brian
     
  18. redwing1951

    redwing1951 Well-Known Member

    1,477
    193
    63
    May 13, 2014
    New Hampshire/Florida
    Brian I think we would all be interested in the trial. Please share your experience with us. Thanks.
     
  19. I would love to hear about the trial as well!
     
  20. sjw111

    sjw111 Member

    95
    15
    8
    Nov 3, 2016
    JOH is one of the few that is asking the right questions. Most docs don't care at all about the underlying cause. JOH and I have had our brief "moments" on this board and not always agreed on outcomes of certain treatments, results or methods of study etc. But from a distance its hard to question his motives, or desire to help. Very cool. Thanks JOH. For those that suffer especially the newly diagnosed before damage is done this regimen does no harm. And just may well be your ticket out of the woods.
     

Share This Page