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Labyrinthectomy Scheduled

Discussion in 'Your Living Room' started by Blakeh, Aug 6, 2021.

  1. Blakeh

    Blakeh Active Member

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    I have a Labyrinthectomy scheduled for August 16th, and I am very excited.

    This website has been very beneficial to me. It's where I found out about anti-virals and all other recommended ways to live with Meniere's.

    Here is a short background on what brought me to a Labyrinthectomy. A lot of the timelines are kind of blurry to me. This is as I remember it.

    Diagnosed 8 years ago at the age of 34. I have tried a lot. The first was low sodium and prednisone with no response. Within a short time, I got anti-virals and experienced relief so great I wanted to shout from the rooftops.

    Over the years, I used Famciclovir and Valacyclovir from various manufacturers. Some manufacturers were better than others. Additionally, I was on a JOH regimen with added monolaurin and olive leaf extract.

    I always ate healthy foods and exercised.

    About 2 years ago, anti-virals stopped working. I was frequently getting sick and experienced my first drop attack.

    Enough was enough. I reached out to Dr. Gacek (the son). Worked with his anti-viral protocol. I even went to Alabama to get a procedure done by him, where he put a dissolvable sponge of ganciclovir directly on the nerve in my ear. Unfortunately, it did not work for me.

    I'm sharing all this for two reasons:

    1. Hopefully, it helps someone else.

    2. To explain, I did not start at a Labyrinthectomy. I ended up here.

    I know other members have been kind enough to document their recovery process from a labyrinthectomy. So I do not know if mine would be helpful. But if anyone believes it could be useful, please reply here. I will certainly post my process.
     
    Last edited: Aug 6, 2021
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  2. Brian

    Brian Member

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    Please do
     
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  3. redwing1951

    redwing1951 Well-Known Member

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    I am very excited for you! You gave it your best before choosing the laby. 8 years is a long time to suffer with the beast. Get that monkey off your back and get on with your life. I look forward to following your journey. Best of luck and God bless!
     
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  4. Onedayatatime

    Onedayatatime Active Member

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    Best wishes and prayers to guide the surgeons hands for you my friend. Are you opting for the CI with the Laby?
     
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  5. Bulldogs

    Bulldogs Well-Known Member

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    I predict you will disappear from this website because in two or three weeks you will have your life back and live a long normal life free from the beast.

    congrats

    keep us posted.
    Walk walk walk and when you don’t want to walk anymore walk a little more. Push yourself on different types of surfaces and before you know it all will be normal.

    Joe /Bulldogs
     
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  6. Blakeh

    Blakeh Active Member

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    Thank you!
     
  7. Blakeh

    Blakeh Active Member

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    Thanks, Joe. I appreciate it. Hopefully I’ll stick around to offer support where I can. I’m really excited to get my life back.
     
  8. Blakeh

    Blakeh Active Member

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    Hi, I’m not opting for the cochlear implant, it would take much longer for insurance to cover it (if they would) and that would push the surgery back. I took first available surgery date! I can’t get it fast enough.
     
  9. Brian

    Brian Member

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    I’ve had this for 8 years now, but I never went to see a doctor about it because I didn’t thing all the symptoms were related. This started in 2013 and didn’t seek treatment until March this year. The Covid-19 vaccine exacerbated my symptoms so much I could no longer ignore them.
     
  10. Bulldogs

    Bulldogs Well-Known Member

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    amen
    You should be excited to get your life back to normalcy
     
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  11. PleaseNoDizzy

    PleaseNoDizzy Active Member

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    Good luck to you Blakeh! I had a similar path as you, 7 years to labyrinthectomy, although fortunately I didn’t get as far as a drop attack. I echo Bulldogs to walk walk walk after the labyrinthectomy. It feels tricky at first but the more you move the faster you’ll be back to a close version of your old you. I’m 3 years post labyrinthectomy now and so so so glad I did it when I said.
     
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  12. PleaseNoDizzy

    PleaseNoDizzy Active Member

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    *meant “did” not said lol. I really did do it.
     
  13. Blakeh

    Blakeh Active Member

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    Thank you. I’m super excited, only 8 more days!

    I will definitely walk and walk. Especially if that is what will speed up my recovery. I hope to be back exercising soon as well.
     
  14. Blakeh

    Blakeh Active Member

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    8 days and counting!
     
  15. Kevinb003

    Kevinb003 Active Member

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    Best of luck! Do keep us posted.
     
  16. redwing1951

    redwing1951 Well-Known Member

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    Yes as stated above walking is the answer to a quick recovery. Walk on different terrain and look out over the horizon. If you need to use walking sticks in the beginning do so just keep walking. Also naps in between walks can be helpful. Nap enough to rest your eyes. Best of luck!
     
  17. Marta

    Marta Active Member

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    All the best to you !!! Keeping my fingers crossed and please do keep us posted.
     
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  18. Blakeh

    Blakeh Active Member

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    I definitely will! Thank you.
     
  19. Todd

    Todd New Member

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    Best of luck! I had my laby in April and then cochlear implant in June. I split the two for the same reasons.

    I’m very happy I did both. Be patient with the implant if you go that route. It takes time.
     
  20. Punture

    Punture New Member

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    Just checking in how your labyrinthectomy went.
     

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