Hi everyone, I looked but have not seen any posts here on government lobbying in the US for Meniere's research. I have heard that there is no US funding dedicated solely to Meniere's research. I am aware of the Meniere's Research Fund in Sydney and applaud their work. Does anyone know if others have tried lobbying or contacting lobbyists to lobby for $ in the US? It appears as though there is isolated research going on here and in other countries. But, it does not appear that there is much coordinated effort. There are also appears to be an enormous lack of funding let alone recognition of Meniere's and how it affects people. I am just curious what you may know about this rather than trying to invent the wheel if it has already started. Thanks, Sailing Guy
I'd like to know the answer to those questions. I've done VERY limited research, and from what I can tell, the lack of awareness, while universal, seems prominent in the US. Also, research money/lobbyists, etc, I've observed a trend in a lean toward, "vestibular disease," in general, if it exists at all. NOT a meniere's specific orientation. I'd love to know if anybody else knows more/better information??