It would be very nice to have someone else play the fun and games. It takes your mind off of your troubles if just for a little while and it is fun. Take a break from your day and have a tiny bit of fun! And again, ((( hugs ))).
Debbie - the good news is that Menieres' is not a death sentence. It's very difficult to live with but you just continue o fight back because there are good times even if they may be few. Fight through it. We're all here for you and even this is a good start. Fight on girl - just keep fighting on...
Debbie I too have bilateral ear disease. Have felt the same as you. I am not up on your story or age. I hope you can find the right treatment have the best possible life. There is help for you just have to find the right doctor and treatment. I am keeping you in my thoughts and prayers. prayers.
Well, I am having a slightly better day today as I actually got sleep and it was restful. However, my sentiments haven't changed about not wanting to fight anymore. I want to live, I just don't want to fight this dragon any longer. The same day I returned to menieres.org, I returned to the Suicide Forum as well. Like I said, I don't want to die, I want the beast to die. The only treatment we have found that helps me to some degree is the grommets in the ears. However, they fell out and I can't afford to have them replaced right now. This is one reason I am feeling much worse, that and it is now our rainy season her in Knoxville, TN and weather is one of my triggers. As for the volunteering, it is difficult. If I were able to do that I'd also lose my disability as the government thinks if you can volunteer, you can work. I never know from day-to-day if I will even be able to get out of bed so it is hard to plan to do things regularly. I would feel guilty not filling my obligations. I have people on the internet and many (those who aren't ill with one chronic illness or another) grow weary when you can't always be there to chat or if you are having a bad day and need to vent. I usually isolate when I am having bad and not-so-good days to keep my poor disposition from affecting other people. Last time through (the main reason I left menieres.org) was bad experiences in Fun & Games. Perhaps I will give it another try. The other reason I left was the same 'cliquish' attitudes in the chat rooms. Sleep has helped and I can think clearer at the moment. I just feel powerless to fight and try to convince the government they need to do more to find a real cure and cause for Meniere's. All they want to do is find drugs and chemicals to treat the triggers and symptoms. My triggers can't be dealt with using drugs and the only one I can do something about it is minimal considering I have a chronic illness and that is stress. I listen to meditative music every day and try to do in depth meditation at least once a week. Hormones and weather there is no treatment for. Plus with all my drug allergies I can't take the stuff they develop without the possibility of death. One day. One day we will all be free of this and be able to live life as normal healthy human beings.
Me too Debbie on the weather and hormones, and wanting "out" when it's bad. One unexpected thing that has helped me is The Flylady. Have you heard of her? It's hard to explain but she has emails, a website and a book promoting Baby Steps, progress not perfection. On the surface it is about housework, but it really applies to many challenges. I hate housework, but sometimes it's her little routines that get me doing what I'm able and feeling less anxious and down on myself. What did you enjoy doing when you were a little girl? Is that something you could approximate now for fun?
As a girl I loved reading, writing, riding my bike, taking long walks and swimming. At least I can still read and write to some degree. In fact, in a few minutes I am going to do some more work on a short story I am writing, inspired by a song that a friend of mine wrote.
Cool! Glad you can enjoy some creative time. I'm hoping to do some gentle gardening and make some simple dinner for my family. Take care.