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new here (but not to the md...)

Discussion in 'Your Living Room' started by sarah moyal, May 15, 2019.

  1. sarah moyal

    sarah moyal New Member

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    May 15, 2019
    Hello every one,

    my name is Sarah, I am 38 years old and I had have MD for about 10 years now.
    I am going to have a laby in the coming weeks as all other treatments failed (and even cause bad side effects)...
    I don't need to tell you how the anxiety and sheer fair effects your life... at the moment I refuse to leave my home and have not stepped outside for a haul month other but going to the doctor.
    I am counting the days for the laby, I just want my life back...
    the fair of the attacks are so big that I latterly do not care about the pain after surgery or the hearing loss, I could not care any less, I just fair that after the laby I will have a spinning dizziness attack or felling.... is it possible??
    If you can shear with me the side affects you had after surgery and how long ot took you to recover I would really appraised it.
    Thou I have read quit a lot of post abut recovery here, I am still thirsty for more.

    Thank you:)
     
    • Fistbump/thanks Fistbump/thanks x 1
  2. redwing1951

    redwing1951 Active Member

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    May 13, 2014
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    Sarah many of us on this board have had a laby. My recovery went very well. I had one overnight in the hospital. I had 2 weeks of feeling off balance but I did not have any spinning or vertigo attacks. I did experience double vision for the first week which is not uncommon. I started walking a lot! As soon as you can start walking do so as much as you possibly can. Walking will train your brain to work with the one vestibular system you have left. I felt good enough to return to driving after 2 weeks. Today I hike,bike,swim basically do all the things life has to offer. I still have tinnitus but it is mild and does not interfere with my lifestyle. I hope you have as much success with your surgery that most of us have had. Best of luck to you.
     
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    • Optimistic Optimistic x 1
  3. Mac

    Mac Member

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    Oct 23, 2017
    Good luck Sarah!! Please let us know how your recovery goes!
     
  4. June-

    June- Active Member

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    May 12, 2014
    Good luck, Sarah! Let us know how your recovery goes!
     
    • Like Like x 1
  5. Clare

    Clare Member

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  6. AnneT

    AnneT Active Member

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    Welcome Sarah! I’m waiting... I’ve been ready to do a laby since January. I get you. I see a specialist finally on Tuesday- she can offer gentamicin but not surgical stuff (I’m another waitlist for that). Did you go through gentamicin shots?
     
  7. June-

    June- Active Member

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    I second the walking! If you need to, start with a walker, then a cane, a friends arm, but walk everywhere that is safe. Stay away from roads with no sidewalks, remember you cannot tell which direction cars are coming from, stay off ladders and such but anything you can do in a safe environment, do it. Do not sit and wait for your balance comes back. It doesnt work that way, you have to go out and hunt it down. Walk, walk, walk.
     
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  8. PleaseNoDizzy

    PleaseNoDizzy Member

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    May 12, 2014
    Clare already linked to my post... it's long and wordy and I don't have much to add LOL! Good luck to you Sarah. It's pretty rough immediately after the surgery but with a little work you'll feel better than you have in years.
     
    • Like Like x 1
  9. Stacbird

    Stacbird Member

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    May 26, 2014
    Hi Sarah, I have had the laby and have no regrets what so ever. After surgery I only had a short spin. Nothing like you have now before surgery. Had some double vision but didn't last very long. You do have to get up and get moving! Walk, walk and walk! Laying around only makes it harder..
     
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  10. sarah moyal

    sarah moyal New Member

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    May 15, 2019
    I hope it too:) thank you!
     
  11. sarah moyal

    sarah moyal New Member

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    May 15, 2019
    I will:)
    Thank you
     
  12. sarah moyal

    sarah moyal New Member

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    May 15, 2019
  13. sarah moyal

    sarah moyal New Member

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    May 15, 2019
    Yes i did. I got 3 shots 7 years ago and it help for about 6 years but then the attacks came back full power, tried the shots again but something went wrong and for a haul month i would have hours with no balance at all just like a MD attack but without the spinning... the doctors (all 5 of them checking me in the same room at the same time) could not figer out why these attacked happened. So we wait untill these "no dalance" attacks will stop (and they did) but then the maneire attacks got really worse (3-4 attacks a week) so lady is the final tretment
     
  14. Rebecca

    Rebecca Member

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    Jan 19, 2019
    Sarah, I'm not telling you this to discourage you from doing the surgery. I'm mainly bringing up my personal concerns for feed back. My ENT says surgery is the very last resort. Try everything before. Not sure why he's so against it. Maybe because it's fairly major surgery, or maybe he's concerned because I am experiencing the noise in my other ear now too, and it might be the onset of MM hitting the other side. I'm thinking you have to at least have one balance mechanism, even if it's not working properly, and if you remove the one you KNOW is diseased- what do ya do if the MM goes bi-lateral?? What he does say is that he likes to try to correct the underlying cause of the disease.
     

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