New here

I haven’t had the poking my eyes out feeling, but during the gentamicin recovery I had the stuck or mismatched eyes feeling after opening my eyes. I might have had something similar after bad bouts of vertigo attacks... probably my vestibular system getting killed off.

 

Hello Raider Nation,

A few years after being diagnosed with Menieres, I also was diagnosed with MAV. I have had a bad time with the MAV since May. Unfortunately you have to wait a long time to get appointments where I live. Downside of urban areas. Haha I am still waiting for an appt with the Headache Center...April 20, 2020.

My husband did research on the cefaly and now I want to get a prescription for it when I go to my fly-- by- night neurologist in October. I have read good reviews...would rather try that before topomax drug. I already tried verapamil with a terrible reaction.

I am on a MAV forum too, but only 3 people have tried the cefaly...two liked it and said decreased attacks, one was allergic to the adhesive you use to attach device.

I have been legalistic in following the Heal Your Headache diet and regime by David Buchholz. I f you have not read it you should get a copy off of Amazon as soon as you can. Unfortunately, even though I have been faithful to the regime...this summer's weather really was brutal to my MAV.

I also feel I benefit from Migrelief. In one pill it combines b2, magnesium and feverfew. You can get it off Amazon. Some MAV people like Migravent, but that has butterbur in it, which is supposed to help migraines but I was allergic to. I TAKE a separate coq10 tablet....which I also think really helps and 5000mg D3.

Please let me know your progress on the Cefaly. I know all of these things take time to kick in, but hopeful this will be very helpful for us both. Wishing you the very best. Bonnie

 

RaiderNation, yes. If standing up and reading something in hand or cell phone, then looking up, causes slight dizzy.

I've noticed when I'm in a crouched position for a little while, it'll cause more than mild dizzy. Like say, crouched on one knee fixing an electrical socket. It'll cause dizziness for about 10 minutes afterward. Not crazy dizzy, but uncomfortable dizzy.

P.S. I'm a Raider fan too. Good win against Denver last night to open the season.

 

I tried CBD and saw no benefit. To be fair, I had to stop due to allergic reaction. But this question reminds me of this:

 

I use CBD for stress and anxiety. Stress is the number one reason I have had flair ups of MD. The CBD has definitely made a difference in my stress and anxiety levels.

 

RN,
I also experience what you describe with your eyes. Been 4 years since an my last eye exam, I plan to discuss this issue then next month as I need new glasses anyway. Still not sure if it's related to the MM or MAV. I believe it is, but not positive.

 

CBD seems to help with anxiety. Cannabis helps even more, and seems to alleviate the feeling of dizziness. I don’t know that it can stave off an attack but I found this woman’s account interesting: Meniere’s Disease and Marijuana by Constance Bumgarner Gee

 

No warning, just happens. Happened twice when I was driving and turned my head to the left to check for traffic. Once , like you, looked down at iPad and bang, there it was. I've had it for many years, had attacks while driving a vehicle, once while on a trike ( three wheeled motorcycle). Don't trust myself on a two wheeled cycle. My attacks last around three hours and takes a couple days to get my feet back under me. As far as having an attack in public, if it hasn't happened to you yet, it will. Prepare yourself get a little emergency pack and carry it with you. Get a letter from your doctor and carry with you when you drive, those pesky highway patrol guys have a tendency not to be to understanding when your parked along the highway laying in the front seat throwing your guts up. Lol. Trying to explain to them that the worst thing they can do is make you move. A letter might be helpful.
Try to live as normal as possible and by all means,this stuff is stressful and you may want to take some sort of anti anxiety med.

 

Hello I am new to the forum. I can totally relate to this. HAd it for about 5 years, it burned itself out and symptom free for about 5 years and now it has come back. ENT prescribed low sodium pills and that's it. I am wondering if Gentamicin treatment would work for me

 

I use Canadian pharmacy king. Super easy to upload your Rx and the rest is self explanatory.

 

You mentioned the chair yoga for head movements there Raider, I developed a yoga sequence for myself that combines the Epley and Foster maneuvers...I call it the 'Epster'! I am not sure how to show you, can maybe record and send to you? It helped me enormously with bending over dizziness. If you have some yoga experience it is very easy to do daily xx

 

RN, Have you applied the Buchholz migraine diet yet? It made a huge difference in my condition. I've been Vertigo free since July 30.