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Discussion in 'Your Living Room' started by Jeff Paul, Mar 26, 2019.

  1. Jeff Paul

    Jeff Paul New Member

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    Mar 26, 2019
    I was very glad to find there is a support group like this! I was diagnosed with Meniere's last fall by a local ENT specialist. I am 55 years old and in hindsight, have had various Meniere's related (and relatively mild) symptoms since my early-mid 20's. It wasn't until last July that I had my first serious Vertigo attack then subsequent balance issues and tinnitus which is still ongoing. My July attack led to an ER visit, a CT scan and blood/urine work and a diagnosis of Benign Positional Vertigo by the ER doctor. I wasn't confident of that diagnosis so had some Vestibular testing done and those results ended with a Vestibular Neuritis diagnosis. The doctor at that time did not prescribe anything saying if he had saw me a couple weeks ago he would have prescribed steroids and anti-viral but he felt my recovery was far enough along not to warrant it. Into the fall my tinnitus seemed to increase plus some hearing loss in one ear was noticed. My balance had pretty much returned to normal but had no other symptoms when I went to the see the ENT specialist. After many (and I mean many!) blood tests mainly to exclude things plus a MRI he said he thought it was Meniere's. Been on a low salt diet since and was feeling pretty good of late but just had another bad Vertigo episode 2 weeks ago. It seems as I am in the same recovery pattern as the July episode, balance is slowly coming back but tinnitus still remains. ENT just put me on a diuretic plus started histamine injections. Still haven't found my "trigger" yet but hoping the current treatments help! I did notice some good results by some with B6/B5 supplements. I do take a multi-vitamin but B6/B5 are only 50mg each not the 125/100mg recommended. Can't seem to find any low level B6/B5 supplement that I could possibly take on top of the multi I already take but also not sure if it's a good idea to do that. Sorry to be so long winded just glad to have a place for resources and support so any recommendations/suggestions would be appreciated!
     
  2. teesdale

    teesdale Member

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    Oct 24, 2014
    Jeff, the B6 at 100mg is easy. Vitamin Shoppe, GNC and others all carry it. I cannot seem to fine the B5 in the proper dosage or in a tablet form to cut to the 125mg.

    Hopefully, someone will provide a link to a site that sells the B5 in tablet form.
     
  3. Jeff Paul

    Jeff Paul New Member

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    Mar 26, 2019
    I found 500mg on Amazon in tablet form so I plan to quarter them. They are the Natural Nutra brand.
     
  4. Tony Wilson

    Tony Wilson Member

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    Apr 2, 2019
    Hi Jeff, just joined the forum myself and am seeing if this is a good outlet for my anxiety/depression that I never thought would enter into my life. However, after 3 years with Meniere's and a really rough week of over 6 vertigo attacks and being constantly on guard it's inevitable I suppose. Welcome to the forum and I hope you don't experience anymore vertigo attacks (I lost count of mime awhile ago).
     
  5. AmyLeigh

    AmyLeigh Member

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    Mar 26, 2019
    Welcome. I hope the B5/B6 works for you - it seems to be doing the trick for me. I also do the John of Ohio (JOH) regimen that I found on here and it seems to be helping too. Best of luck, keep us posted!
     

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