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newly diagnosed with questions

Discussion in 'Your Living Room' started by Kim1101, Jun 9, 2021.

  1. Kim1101

    Kim1101 New Member

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    Hi! I was told by my ENT that I most likely have Meneire's Disease and I have so many questions. I am a runner and enjoy exercise but due to the dizziness I experience, my husband is concerned. I have cut back my sodium intake to 1500 or less, I started taking Ginger Root and I have been taking water pills and my dizziness has subsided. I am curious if the lower sodium intake will affect me during running. I don't usually run long distances but I am doing a half marathon this Sunday (6/13). Any advice is appreciated!!
     
  2. yellowboy

    yellowboy Member

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    This &%$# disease affects everyone differently. Do whatever you want to do until you can't do it. You will find your limit, and it may vary if you are having a good day or bad day. My biggest problem was getting a good nights sleep so I didn't feel like a zombie all the time. I am now on an antidepressant so I only feel like a zombie half of the time.
     
  3. jaypr

    jaypr Member

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    Do yourself a favour and or borrow purchase a copy of Heal your headache by David Buccholz. Don't be put off by the title. I bought it in 2005 I have never looked back.Only come here occasionally to pass the news on to unfortunate people like yourself who are looking for answers. Wishing you well
     
  4. redwing1951

    redwing1951 Well-Known Member

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    I am not sure if the lower salt intake will affect your run. I would make sure that you drink plenty of water the day before your run and during the run. Very important to stay hydrated! Dehydration can cause dizziness even if one does not have menieres. Keep running and exercising as it is a great stress reliever. Stress can exacerbate menieres. Best of luck in your race. And remember to hydrate.
     
  5. Onedayatatime

    Onedayatatime Active Member

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  6. Onedayatatime

    Onedayatatime Active Member

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    Not sure what u mean by water pills, but diuretics can lower your potasium level which can prove dangerous. I was monitored while on diuretics and was placed on a potassium supplement. It took a while for my potassium level to drop if i remember correctly.
     
  7. bob_

    bob_ New Member

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    When taking a diuretic, eating less than 1500mg sodium per day, and exercising a lot, I’ve had symptoms of having too little sodium in my body. It feels like dehydration, but drinking more water doesn’t help. You may want to consult with your ENT.

    Then again, the run already happened, so I hope it went well.
     
  8. Rubygirl

    Rubygirl Member

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    While nobody should be eating excessive sodium, I think that in many cases the balance of sodium to potassium in a food is important as the two offset each other. 1500 mg/day is the one-size-fits-all number that is thrown out there but for someone like yourself, your needs would be much higher. I just recommend making sure that you are getting at least double that in potassium. Especially with meals... if I know there is a little more sodium than I would like in a meal I make sure I eat a banana with the meal or easier still, pop some potassium supplements. Postassium is your best friend!!!
     
  9. david2salsero

    david2salsero New Member

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    What you’ve listed is limited. I’m curious how they came to that conclusion? Please do share why you see diagnosed with MM. I’m an athlete. I’m back on a diuretic that doesn’t reduce your potassium levels. I had a recent bout of hearing loss that I’m now dealing with again. The most important thing to do is journal to find what your triggers are. It’s a long journey. Don’t give up.
     
  10. Onedayatatime

    Onedayatatime Active Member

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    Do diuretics cause low potassium?
    A simple search will connect the use of some diuretics to reduced potassium levels.
     
  11. Brian

    Brian New Member

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    Your doctor is an idiot. You don’t have Ménière’s, maybe an electrolyte imbalance but not Ménière’s.
     
  12. Kim1101

    Kim1101 New Member

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    Jun 7, 2021
    My symptoms are loss of hearing in my right ear along with tinnitus and the dizzy feeling. My CT scan and MRI don't show any blockage.
     
  13. Kim1101

    Kim1101 New Member

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    He diagnosed this based on loss of hearing along with tinnitus and the dizziness I experience 24/7
     
  14. Kim1101

    Kim1101 New Member

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    Jun 7, 2021
    Thank you! I was under 3 hours so I was pretty happy!
     
  15. Cheryl

    Cheryl Active Member

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    Hi Kim,

    Typically, at least in the early stages of Meniere's, 24/7 dizziness is not a symptom. I realize everyone is different, but doctors say there are episodes of vertigo and nothing in between them. That was my experience early on.

    My Meniere's is bilateral now and I've had a VNS in one ear, so at times I do have some dizziness, but what you're experiencing does not sound like Meniere's to me.

    You owe it to yourself to get a second opinion from a neurotologist. Most basic ENT's aren't really qualified to diagnose and treat Meniere's.
     
  16. Kim1101

    Kim1101 New Member

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    Jun 7, 2021
    I drink between 80-100 oz of water a day so I'm pretty sure I am not dehydrated.
     
  17. Kim1101

    Kim1101 New Member

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    Thank you. He is basing it on the CT scan, the MRI and the hearing loss and tinnitus in my right ear
     

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