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Please Help (3 Years of Severe Vertigo)

Discussion in 'Your Living Room' started by Holly, Jun 5, 2019.

  1. Holly

    Holly New Member

    Jun 5, 2019
    Fort Worth, Texas

    I have been dealing with this severe vertigo for 3 years after suffering brain trauma from a fall. I have seen countless ENT's, Neurologists, and no one seems to have a clear answer. I am currently on 400mg of Topamax and it seems to give some relief so there is something in the Topamax that works but I am still suffering enough where I am not comfortable enough to drive.

    My "episodes" consist of the room spinning. Not being able to move my head at all or I vomit, ears ringing, and then brain fog afterwards. The day after is almost like a hangover. Horrible fatigue and a whooshing sound in my ears. I have horrible balance all the time and can not walk in the dark at all. I have bruises on my legs at all times from bumping into things from my balance.

    Please help me! I am 24 and just recently married. I CANNOT live like this. I am miserable. I am at my wits end. I do not know what else to do.
  2. Cheryl

    Cheryl Member

    May 23, 2014
    Hi Holly.

    Sorry to hear what you have been dealing with.

    You need to see a neurotologist or otolaryngologist.

    A neurotologist is a board-certified otolaryngologist who provides medical and surgical care of patients with diseases that affect the ears, balance system, temporal bone, skull base, and related structures of the head and neck.

    These types of doctors are much more knowledgeable about complicated balance and ear problems than a regular ENT.
    • Agree Agree x 2
  3. Dario

    Dario New Member

    Apr 30, 2019
    Hi Holly,

    Sounds bloody awful. I had a fall about 3 years ago which I think was my journey to being diagnosed with Meniere's also. Have you tried Betahistine? In Australia they are readily prescribed for vertigo and they help me a lot. You do need to take them everyday as they need to be in your system to work properly. I understand that they are not as common if you are in the states. First I was on 16MG called Serc and now I am on 24MG called Setear. The active ingredient is Betahistine dihydrochloride.

    See you how you go - I am very interested. They work a treat for me.

    Good luck, Dario
  4. June-

    June- Active Member

    May 12, 2014
    Where do you live Holly? Maybe someone can recommend a doctor in your area.

    What diagnosis have the doctors given you or rule out so far?
    • Agree Agree x 1
  5. teesdale

    teesdale Member

    Oct 24, 2014
    Holly, so sorry that you have to deal with this. You are fortunate to have found this site as there are many here who can offer advice - like Cheryl did above. You need to be vigilant and document everything you do. Please try to stay optimistic that you will find relief. Many here have.

    Wishing you good luck in your journey to regain and maintain good health!
  6. AnneT

    AnneT Active Member

    May 14, 2014
    How is your hearing? Do you have any ringing in your ears? Any sense of fullness in an ear?

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