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Post Labyrinthectomy - daily progress journal

Discussion in 'Your Living Room' started by Blakeh, Aug 17, 2021.

  1. LuisMeniere

    LuisMeniere New Member

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    Thanks Redwing!
     
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  2. Blakeh

    Blakeh Active Member

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    Day 14

    I have been feeling better and better everyday. The last few days I have been walking around the city (NYC), grabbing lunch and enjoying being outside the house.

    The tinnitus has calmed down to pre surgery levels. Looking left or right while walking can give some off balance feelings, but nothing major. Same thing if I close my eyes and move my head. I went on my first car ride since surgery and it did not feel that good. It felt like it was a lot for my eyes to take in, tolarable but borderline motion sickness feeling. But no big deal and was back to normal right after I got out of the car. Since I live in NYC I don't get in the car much but I assume this will also go away with time.

    I still do not have full sensation in my ear, although it’s been healing nicely.

    Since surgery I have not had any vertigo or thrown up. I am not taking any medications. I feel close to normal! I drink caffeinated coffee every morning with no issues ;)

    My physical therapy does not officially start until Sept. 16th. Where I believe my residual symptoms will be resolved.

    My follow up post op appointment is Sept. 3rd, at which point I’m hoping to get clearance to exercise.

    Overall I am extremely happy and relieved I had labyrinthectomy. I wish I would of saved myself years of suffering and gotten one sooner.
     
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  3. redwing1951

    redwing1951 Well-Known Member

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    This is great news Blake. You really are well on your way to a normal life. I am pretty sure your post op appointment is going to be very positive. I think a lot of us who suffered with vertigo wished we had gone for the laby sooner you are not alone in your thinking! Keep up the good work.
     
  4. LuisMeniere

    LuisMeniere New Member

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    Great Blake! Im very happy with your recovery!
    Tell me something, do you have a very large and visible scar with the surgery? I usually walk with my hair shaved! Hahahha
     
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  5. Blakeh

    Blakeh Active Member

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    Thanks, Luis. It has not been long enough to tell, although they cut behind the ear on the crease where the back of my ear meets my head. So even if I had a shaved head I do not think anyone would be able to tell.
     
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  6. LuisMeniere

    LuisMeniere New Member

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    Aug 19, 2021
    Great!
     
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  7. Blakeh

    Blakeh Active Member

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    Thank you. And I appreciate you answering my questions and encouragement pre surgery. It’s a little nerve wrecking deciding to have a labyrinthectomy, so chatting with yourself and others on the forum were the deciding factors.
     
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  8. Weeba

    Weeba Member

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    I would like to hear from someone that has had the vestibular nerves removed from both ears. Thanks.
     
  9. LuisMeniere

    LuisMeniere New Member

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    Hi Blake,

    How did it go your follow up post op appointment? Did you had authorization to exercise?
     
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  10. Bulldogs

    Bulldogs Well-Known Member

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    in my humble opinion I would go for the laby’s with a CI

    a VNS (vestibular nerve section) is brain surgery and a laby is an Ear surgery and far less complicated. Also the VNS does nothing to stop the hearing loss. Give me the combo laby and Cochlear implant any day.

    A laby does nothing to the nerve connection to the brain. The laby is the removal of the semicircular canals in the ear. Now they leave the cochlea (snail portion) in there for a CI if needed.

    God Bless
    This is just my humble opinion
    The laby os the gold standard and it gave me my life back
     
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  11. Blakeh

    Blakeh Active Member

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    Day 20


    My post-op surgery appointment was two days ago.

    I was cleared to do anything I want without restrictions, including flying, exercise, and swimming.

    My balance has greatly improved and I walk around without discomfort.

    The last two days I'm back at the gym, lifting weights, rowing and running.

    I feel really good and could not be happier or more excited about the future.

    My tinnitus is lower than pre-surgery and very manageable.

    I still have my first Physical Therapy appointment scheduled for the 17th. I’m improving so quickly I do not know what I will work on during PT.
     
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  12. LuisMeniere

    LuisMeniere New Member

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    Blaked, Im so happy that i cant put in words! I feel your success like my success! Very happy with your quick recovery! Ieeeeeeee! :)
     
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  13. Marta

    Marta Active Member

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    :) Such great news! Congratulations !!!
     
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  14. Bulldogs

    Bulldogs Well-Known Member

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    Awesome. You got your life back. No more anxiety about your next attack…..Go enjoy the rest of your normal life.

    amen
    Sooooo happy for u
    Joe/Bulldogs
     
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  15. redwing1951

    redwing1951 Well-Known Member

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    Blake you did it!!! So happy for you and your family. No looking back just keep going forward. Enjoy the life you longed for. God Bless.
     
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  16. Blakeh

    Blakeh Active Member

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    Thanks for all of your support. It means a lot and I appreciate it.

    I will give another update in two weeks.
     
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  17. LuisMeniere

    LuisMeniere New Member

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    Hi Blake! How are you? Tell us everything!! :)
    How are you feeling last 2 weeks? Are you already 100%?
     
  18. Blakeh

    Blakeh Active Member

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    Hi Luis,

    Yes, I am back at 100%. I could not be happier or more grateful. I can do anything anyone else can do. I’m finally free of the beast!

    I plan on writing a long post on my journey to a labryinthectomy. I played around with anti virals for several years, and I regret not getting the surgery sooner.
     
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  19. LuisMeniere

    LuisMeniere New Member

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    Hi blake, i'm very happy with you recovery! Ieeeee :)

    Based on your story i made the decision to also make the labryinthectomy! I will do the exams in November and also set the day for surgery (It will be on January). I could do it earlier but I wanted it to be in January so I could mentally adapt to the decision...

    I will wait for your post of your labryinthectomy journey!

    Thank you for all the information that you give in the last month! :)
     
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  20. redwing1951

    redwing1951 Well-Known Member

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    What great news Blake! Life is good go out and enjoy your new found freedom. God bless.
     
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