If big-pharma and general extant interest within the medical community is absent, this leaves only the afflicted to generate interest and raise money. Minimally, aggressive interest has to be pushed by those with the disease. I see frivolous-whatever raise millions of dollars. The latest viral 'challenge' was of people snorting condoms. Meniere's is an excellent cause and I have no doubt people would give in order to help. However, people will not help unless we embrace our own advocacy and stop waiting for big-pharma, or whomever, to solve our problems -- and leave entitlement at the door when someone points out more could be done on different fronts by us, as individuals.