Question for those on a/v

Great! news I am happy you are back to feeling better

 

Hi deadeye I was hoping you are back to feeling better.
You can try OTC allergy meds or nasal sprays I have read several posts on the old forums that it helps them with MM symptoms.

 

will do thanks so much

 

Nice improvements! I hope you get good results on your hearing test. fingers crossed!

 

Sounds good! nicgmer seems like the AVs are doing right by you

 

Great news. I was told the highest registers are the least likely to improve. That was true in my case.

 

LOL glad that tone is back to perfect..awesome! and glad the Av's are making you feel better

 

Great news! Keep doing what is working. It took me quite a while to get full (meaning into normal range) hearing improvement in all frequencies. Don't remember how long, but longer than 3 months.

 

Awesome! BTW what is the dosage you are on? and what dosage did you increase when having a bad day?

 

Thank you, I have a friend that seems to do okay on 3 grams but when she reduces to 2 her symptoms come back. We are not sure being on 3 grams for so many months is a good thing. Any ideas?

 

I was wondering the same thing. I have CH in one ear, and am doing everything I can to prevent escalation to full blown Meniere's. I too have been on high dose Acyclovir (2400mg/day), until just a few days ago when I was fortunate enough to switch over to Valacyclovir. I too have been having some problems backing my dosage down. Seems like whenever I back down on the Acyclovir, almost immediately, I can start to feel the fullness coming back and increasing tinnitus. Once this happens, I go back to the higher dosage, and everything seems to normalize again. This is concerning because my common sense is telling me I probably can't sustain a dosage like this forever. My GP has been ordering regular blood tests, and I know that is key. The big concern is Kidney function and other blood chemistry. The Valacyclovir is supposed to be a more efficient variant in the Acyclovir family, so I was hoping maybe I could get by with less. Some have said we need to stay on the higher dosage well after things get better, in order to make sure the virus is good and suppressed. I might be a little too quick to start backing down...not sure. Anyone else have anything to add?

 

Consider famvir too. I was told by my dr, it is the best of all the antivirals to cross the blood brain barrier.

 

I may be wrong but I somehow get the impression from studies I have read famvir is best for hearing and acyclovir or valtrex is best for vertigo.

 

I think in the Famvir study which was placebo controlled, NOBODY got vertigo, neither placebo nor famvir group so no claim about vertigo could be made where as there was indications that the favir group did have improved hearing. But still, noone got vertigo. The doctor was at a loss to explain those results. But I think it is a misinterpretation to think therefore famvir is not as effective with vertigo. Anecdotally, I think a lot of people got relief from vertigo with famvir. And some like myself, have not progressed to vertigo from hearing only issues because of famvir.