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Recommendation for antiviral DR in northeast

Discussion in 'Your Living Room' started by Tomaso, Jul 3, 2019.

  1. Tomaso

    Tomaso New Member

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    Unfortunately I found out Dr. Gacek is retiring so I can't get in there to get put on antivirals. I sent the information to the Dr i'm seeing now and when the information was fresh in his mind he was considering it and specifically said we can try antivirals or steroids but not both at the same time. Now he didn't even respond today to the question when I mentioned that, but rather chose to ignore me completely.

    I've been dealing with menieres for two years. I can get anywhere from 3-7 vertigo bouts a year that are brutal. I'm absolutely desperate to find a Doctor in the northeast that is willing to prescribe antivirals. Can anyone recommend one.

    I've done a tremedous amount of research over the years and the most positive information i've come across is the antiviral approach. Everything else seems to be horror stories or invasive surgeries or procedures. I know about the JOH regimen, but i'd rather just cure this problem.

    I tried to order acyclovir online, but the company was masquerading as a canadian pharmacy when in reality it was a company in india and indian produced acyclovir. I don't trust it at all. I'm sure if this continues I will get fired from my job. I constantly hear people say they can't do that, but i'm certain they will.
     
  2. Dario

    Dario Member

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    Hi Tomaso, so sorry to hear about this terrible situation. I am in Australia so things are a little different here in terms of what we are prescribed. I haven't come across anybody that is on antivirals for MD - most people are put on Betahistine AKA Serc. Have you tried these?
     
  3. Tomaso

    Tomaso New Member

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    Hi Dario, I read about betahistine but I just want to get this over and done with before it gets worse. I had two vertigo attacks in two weeks. I believe the cure is antivirals and there is scientific proof of it. There was a japanese study, Gacek's and a I saw someone mention the tampa bay institute of hearing mentioned it or promotes it now.

    The vertigo is the worst i've ever felt in my life. It is truly horrible and feels like my life is on stand still until I get it fixed. I'm about to build a house but the financial aspect of losing my job has got me worried.

    The brain fog is also brutal. I will say the steroids lifted the brain fog and my mind never felt so clear it was a truly amazing feeling.
     
  4. Dario

    Dario Member

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    Please, if you do manage to get your hands on antivirals and you cure the MD please let me know by replying to this specific post or emailing me [email protected]

    I would be very appreciative
     
  5. June-

    June- Well-Known Member

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    Try your family dr.
     
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  6. Tomaso

    Tomaso New Member

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    Jul 3, 2019
    I'll try that. I've read that certain brands work better. I never saw which brands of acyclovir work better or I don't remember, does anyone know?

    I think it would be hard to find a family Dr. Willing to prescribe 3000mgs of valtrex per day, but i'm willing to try.
     
  7. June-

    June- Well-Known Member

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    I never took valtrex. I took acyclovir and later famvir. With acyclovir i took 400 mg 5 times a day spread throughout the day. It worked for me. My family dr knew the ents were out of ideas, thought the acyclovir was not very risky and was worth a try. We both knew it was just something to try. I was lucky, it worked.
     
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  8. Tomaso

    Tomaso New Member

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    Thank you for the info. How long did you take it for?

    You're doing a great service by posting on here long after being cured. I've read some of your posts.
     
    • Agree Agree x 1
  9. Pa Cowboy

    Pa Cowboy New Member

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    • Like Like x 1
  10. California Sun

    California Sun Active Member

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    Question: Did the antivirals put an end to all of the symptoms or just the vertigo? The surgeries I had many years ago put an end to the vertigo so far, but the other symptoms are still problematic.
     
  11. June-

    June- Well-Known Member

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    I never had vertigo. The antivirals got rid of horrible distortion, relentless LOUD tinnitus, other strange hearing problems and phantom noises. These hearing problems had beem 24/7 for 9 months. AVs also stopped some odd balance issues such as nausea caused by certain sounds, occasional problems like the world slanting to the right, and a feeling of just not quite steadiness.

    I also regained most of my lost hearing and lost the fullness. I always thought allergy shots helped with these two.
     
  12. Rebecca

    Rebecca Member

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    Question, Did the antiviral have any side effects for you? I have been taking Valocyclovir 500mg 3 TD for a couple months. I also have been taking Betahistine, water pill, Vit. B6 & 5, L-Lysine, and on an extreme diet of no salt, low sodium, no sugar. Thought I might be doing a "little" better with all the MD symptoms, but last night I started having vertigo, though not as severe as I had it when first diagnosed 19 years ago. So, not sure what's going on. Also have been having stomach & bowel problems. That could be caused from all the stuff I'm taking. But, wondered if you have had any side effects? Thanks.
     
  13. California Sun

    California Sun Active Member

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    I've never taken antivirals. That's one of the few things I haven't yet tried. I'm not thrilled about adding yet another med to what I already take and just trying to find out others' experience before I decide to take them--if I can even get them. I may try the L-lysine since I can get them OTC. I've taken diuretics at different times over the years and the experience has been the same each time--they seem to help for short time and then stop. The B5/B6 doesn't seem to have made a difference. Diet has never made a difference one way or another as far as Meniere's goes. I follow a low carb/no sugar diet for other reasons and have never been one to eat a lot of salt--just because I can easily taste a small amount of salt. The low carb/no sugar diet makes me feel generally better overall but has no effect on the Meniere's.
     
  14. Jimii

    Jimii Member

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    I will be seeing a new specialist next Wed. at UConn. I will certainly ask him about anti-virals.
    I will let you know next week. I don't know if Farmington, CT is too far for you?

    Jim
     
  15. JonBubo

    JonBubo Member

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    Tomaso,

    You dont need a Dr for antivirals just the pharma ones. The naturals actually work better but each one has benefits and can be part of the antiviral toolbox. I would invite you to consider doing the naturals in a combination (Lysine, C and one of: olive leaf, monolaurin, oregano oil gel caps) you just buy over the counter. You can get started right away. for most folks it take a few months to get into it and see a lessening of symptoms and frequency of attacks.
     
  16. David Ash

    David Ash New Member

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    Hi June, Can I ask how you are sgetting on with the anti Vir4als, are they still doing their job and helping?
     
  17. Tomaso

    Tomaso New Member

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    Does anyone have the cover page that I saw posted on here to give to a Doctor when handing them the study? I also found another study with an italian doctor. I will like it later this week. There was also a japanese study as well.
     
  18. Tomaso

    Tomaso New Member

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    I have the study. There was a well written short and to the point cover page that was to be handed to your Dr with this study. It was an idea I read off here before.
     
  19. JonBubo

    JonBubo Member

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    Tomaso,

    here are the two things you were requesting.
    1. The Fukishima U. study conducted by Dr. Mitsuo Shichinohe
    2. The JOH report to give to your Dr.

    Abstract

    1990 Despite a variety of proposed causes, the real etiology of Meniere's disease (MD) is still unknown. (outdated) Since no effective treatment has been established yet, the patients with this disease usually suffer from the uncomfortable symptoms for a long period and repeated recurrences. The symptoms and pathologic changes reported to date, let the author to the idea that the majority of MD is caused by viral infection to vestibulocochlear area, probably herpesvirus infection. The author attempted to administer acyclovir (ACV) to patients with MD and obtained a dramatic therapeutic effect. Between October 1990 and October 1997, 301 patients were administered ACV with the dose of 2,000 mg/day for the average period of two weeks. The effectiveness was evaluated by objective and subjective symptoms of patients with MD under a definite criteria comparing features between pre- and after- ACV administration referring to AAO-HNS criteria. Special attention was paid to the patients followed more than three years after the treatment (about 150 cases) for the detailed evaluation of effectiveness. Out of 250 evaluatable cases 89 cases showed 'marked effect' and 116 cases were 'effective', indicating total 205 effective cases (82.0%). There were 24 unclear cases (9.6%). Only 21 cases (8.4%) showed 'no effect'. No side effect was observed in this series of the study.

    Mitsuo Shichinohe's scientific contributions while affiliated with Fukushima Medical University (Fukushima, Japan)




    1. Download and Copy the Premier Medical Article on the Matter.


    Download the article from this site, http://www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf

    Then, print it off — yes, all 17 pages.

    2. Get the Article and a Note to the Doctor.

    BEFORE you have an appointment with your doctor, drop off the printed article to your doctor’s office, deliberately and specifically asking the nurse or office attendant to make sure the good doctor gets to read the article several days before your appointment.

    On the first page of the print-out, make a note to the doctor, asking him to specifically read the Clinical Series section starting on page 103, noting the drugs to prescribe, dosages, durations, etc. The following would be a suggested text, either on the document itself, or a clipped-on separate note or print-out:

    Dr X,

    I respectfully ask you to scrutinize the information in this recent journal article. The author, Dr. Richard Gracek of Boston, is extremely experienced in antiherpetic therapy of Meniere’s, as the article will reveal.

    Read closely the information on P. 103, for effective dosages and durations. Dr. Gracek gains an 88% to 90% complete relief of Meniere’s symptoms with his protocols, described in the paper.

    My thanks.

    That’s it. If the good physician chooses to neglect or reject your provided medical information, it’s time to find a more open-minded doctor who will treat with evidence-based approaches.

    For your information — and for the physician’s — here’s the cogent treatment text. I’ve taken the liberty to highlight crucial information:

    The antiviral treatment protocol for patients with recurrent vertigo is as indicated below.

    Discontinue all previous medical treatments; ensure that patients are cleared for normal
    renal and liver function; use acyclovir tabs 800 mg t.i.d. for 3 weeks and reexamine. If there
    is significant relief of vertigo, decrease to 800 mg b.i.d. for 3 weeks, then to 800 mg daily as a
    maintenance dose. If valacyclovir is selected (in those who fail to respond to acyclovir), use
    1 g t.i.d. for 3 weeks with taper to b.i.d. for a further 3 weeks and then 1 g daily as a maintenance
    dose. The starting dose of acyclovir was given for a longer period (3 weeks) than that
    used for zoster because it was felt necessary to cross the blood-brain barrier to reach ganglion
    and satellite cells with virus.
    Most patients experienced relief from vertigo in the first 2 weeks
    but some required a longer period. The gradual lowering dose was then used to find the
    lowest level maintenance dose for a given patient. Most were controlled on a single dose daily
    but occasionally a patient required an adjustment to 1,200 mg of acyclovir or 1,500 mg of
    valacyclovir.
    These dosages may require adjustment in patients with impaired kidney or liver function.
    The follow-up period was as short as 3 years in the most recent patients and 8 years in the
    earliest patients in the series. Of 106 patients with VN (the earliest patients evaluated up to
    8 years), 93 (88%) had complete relief of symptoms with oral acyclovir, 54 of 60 patients
    (90%) with MD [Meniere's disease] were relieved of vertigo,
    and 27 of 45 patients (60%) with posterior canal
    BPPV were relieved of symptoms. Between the use of antivirals and repositioning maneuvers
    (physical therapy), the number of chronically disabled patients who were candidates for
    ablation of posterior semicircular canal function (canal occlusion or singular neurectomy)
    was reduced significantly.
    As a result of these morphological and clinical observations, our approach to the patient
    with recurrent vertigo has been simplified. It goes without saying that the patient without
    recurrent balance symptoms needs no further treatment after a hearing test and MRI of the
    brain (assuming that these are normal). A Hallpike maneuver is included in the initial examination.
    Those patients with recurrent vertigo are offered a trial of oral acyclovir (or Valtrex)
    for 3 weeks.
    Examination at the 3-week period will determine the sensitivity of the particular NT
    virus to the antiviral.
     
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