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Severe imbalance

Discussion in 'Your Living Room' started by rondrums51, Jul 25, 2021.

  1. rondrums51

    rondrums51 Diagnosed 2004, went bilateral 2013

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    May 12, 2014
    Southwest Florida coast
    Hi, all. I have a couple of questions for those of you with balance problems.
    I've had Meniere's for 18 years, went bilateral 9 years ago. I've tried every treatment, you name it. I even did the you-know-who-from-down under regimen for two years, but it didn't have much effect.
    In spite of the dizziness and other miseries, I was able to walk normally most of the time. That changed early this year. I started losing my balance big time. It felt like my feet were slipping on ice. I've been on a walker for six months. My specialist started me on vestibular rehab exercises. They seemed to help a little, but I still needed the walker. After several months, I got frustrated and stopped the exercises. Bad idea, because this past week, I've not been able to even stand up without feeling like I'm going to slip and fall.
    I'm back on the exercises now and praying for some improvement. I don't want to end up in a wheelchair!
    My question is, those you with imbalance, did the exercises help, and do you have to keep doing them indefinitely? Have any of you stopped doing them and had a regression?
    Thanks, and bless everyone who has this awful disease.
    Ron
     
  2. Marta

    Marta Active Member

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    Jan 26, 2016
    Hi Ron
    I am sorry you have to go through all of this.
    I did do my physio therapy exercises and I continued until I felt good and the physio person discharged me. She gave me the whole pack of exercises just in case I needed them. I never had to look back and I have been physically active (gym etc) ever since.
    ( I was very fit before MD, then because of it I stopped my fitness journey for some 3 years)
    Do not give up. Preserve.
    All the best to you.
     
  3. rondrums51

    rondrums51 Diagnosed 2004, went bilateral 2013

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    May 12, 2014
    Southwest Florida coast
    That's great that your exercises restored your balance. We're all different. My specialist told me i would be doing vestibular rehab for life. He was right, because when I slacked off on the exercises, things got a lot worse.
     
    • Like Like x 1
  4. Bulldogs

    Bulldogs Well-Known Member

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    May 12, 2014
    Hey Ron
    Good to see you back…..sorry you are struggling. You should call John Hopkins and look into their balance prosthesis. Clinical trials. I talked to a guy who lost all his balance from gent poisoning from a stomach infection and he is back running marathons and riding his motorcycle..

    Feels great..

    Talk soon my friend
    Bulldogs/Joe
     
  5. rondrums51

    rondrums51 Diagnosed 2004, went bilateral 2013

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    May 12, 2014
    Southwest Florida coast
    Thanks, Joe. I read about that. But it looks like they can't do because I'm bilateral. It causes some hearing loss, and I don't have a good ear to fall back on. But I'll ask my specialist about it.
    Hope you're well.
    Ron
     

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