1. Get our daily digest email where we email the latest new topics from our Strictly Health forum to keep up with the latest developments! Click here to subscribe.

Three months on acyclovir and no change

Discussion in 'Your Living Room' started by Brother_of_Nool, Oct 8, 2019.

  1. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    When my doctor first prescribed them, he said that I could take them all at one time instead of spreading it out throughout the day. I’ve been taking 400mg five times a day. Does anyone take them all at once?
     
  2. June-

    June- Well-Known Member

    1,637
    38
    48
    May 12, 2014
    No change at all?
     
  3. teesdale

    teesdale Member

    216
    12
    18
    Oct 24, 2014
    1000mg in the morning. 500mg early afternoon. 500mg evening. 1000mg at night.
     
  4. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    My symptoms are the same. My hearing is getting worse.

    That's 1000mg more than I was prescribed. I was spacing them out, but since they don't seem to be doing anything for me, I figured taking them all at once might be worth a try. I'm going to keep on with the AVs and JOH for another month or two, then I'll probably try a different ENT.
     
  5. teesdale

    teesdale Member

    216
    12
    18
    Oct 24, 2014
    Brother, the Gacek report indicates the 3000mg per day to beat the thing down. After some trial and error, I believe that 2000mg per day is my maintenance dose. That worked well for 15 months but now I'm having issues again so I upped it to 3000mg. Of course I may have caused the return of the symptoms. I have been eating a fair amount of Macadamian nuts and I just discovered they have a god-awful arginine to lysine ratio. Talk about shooting yourself in the foot. I should have known better.
     
  6. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    Yeah, nuts are the worst. I’ve been eating yogurt because it has the best Lysine Arginine ratio. However it also has a fair amount of sodium, so I’m scaling it back.
     
  7. June-

    June- Well-Known Member

    1,637
    38
    48
    May 12, 2014
    Not all Menieres cases are viral in origin. Can you find any other clues by observing flareups of your symptoms? Allergy? Migraine? Certain meds? Anything?
     
    • Agree Agree x 1
  8. Onedayatatime

    Onedayatatime Active Member

    229
    31
    28
    Nov 22, 2016
    I did 3000 per day for 3 months to no avail. AV's only help if your issue is viral. Mine is looking to be related to MAV.
     
  9. Pa Cowboy

    Pa Cowboy New Member

    16
    4
    3
    Mar 17, 2019
    3 months is a long time to not see any results. For comparison, I started Valtrex back in March, within 4-5 days there was improvement in the fullness of my bad ear, hearing got slightly better and brain fog lifted. After 2 weeks I felt so much better and thought I'm beating this beast but it did come back although not nearly as bad.
     
  10. Onedayatatime

    Onedayatatime Active Member

    229
    31
    28
    Nov 22, 2016
    Bros,

    One week into my AV's and my pressure increased as did the noise levels. After 3 months of no progress, I ceased and the pressure and noise decreased. I'm the only one I know of that had a slightly negative reaction to AV's
     
  11. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    That’s what I’m thinking now. Maybe something physical. My neck makes cracking noises all the time. But, man, I was so sure it was viral. When I saw that lysine (seemingly) helped me, then found this forum with all these possibilities… Well I’ll play with the dosages and my diet for awhile longer, then maybe I’ll try this hospital in Manhattan that I was given the name of.
     
  12. Bonlyn

    Bonlyn Member

    171
    22
    18
    Dec 29, 2017
    New York
    I have the constant neck noises as well. I went to two different chiropractors who told me from MAV...but I just do not know any more. I live north of Manhattan, is the next place you may try for the neck, or an ENT?

    Sorry the anti-virals do not seem to work for you. One member told me that his doctor told him there are 30 variants of menieres. Why does it always seem we have to try the 29 other remedies before we get to the one that works for us.

    Praying you can find your remedy soon.
     
  13. Onedayatatime

    Onedayatatime Active Member

    229
    31
    28
    Nov 22, 2016
    I've been at it 3 years before I feel like I'm really onto something. Others have been at it much longer. Never give up. Analyze everything. Eventually you will figure it out.
     
  14. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    Longish story, but I was given this in April.

    Department of Otolaryngology Head and Neck Surgery

    They seem promising, but I haven't contacted them. I wanted time to try the stuff on the forum and become a little more knowledgeble.
     
  15. JonBubo

    JonBubo Member

    47
    1
    8
    Apr 11, 2019
    Perhaps just a semantics issue but ....MAV is not a technical cause of meniere's. Unless there is new research that just came out...would love to see that. It is a form or relative of meniere's. Both MAV and meniere's are usually caused by a viral infection complicated by other pathogenic infections. Where and how far the infections have made their way to in the brain and nerves determine groupings of symptoms. If in the brain or endolymphatic area it could result in MAV, not quite up the vestibular nerves near the brain, cochlear hydrops...if the infection made it further up the nerves you get the drop attacks and/or classic menieres grouping of symptoms. This as demonstrated and researched by Dr. Richard Gacek who did both post mortem analysis and clinical to arrive at that conclusion and has borne out well in practice with treatment. Indeed you can have dizziness with no vertigo or drop attacks but without treatment these may develop into full blown classic menieres as the viruses progress unabated.

    The reason many suffer still when taking a single HSV specific pharma is they may not be hitting the correct combination of viruses and pathogens. Many viruses can cause meniere's. Over 10 that I know of. A single pharma may help for some possibly 25 - 50% but it is a dart throw or stab in the dark. You would have to get really lucky that the type, brand and amount are appropriate for what is in your body and the location. This is why diversifying treatment to cover a more broad range of viruses and pathogens is the smart play. things like Monolaurin, olive leaf, oregano oil gel caps, etc. with Lysine and C would have a far, far greater success rate for both MAV and Menieres cochlear or classic.
     
  16. Onedayatatime

    Onedayatatime Active Member

    229
    31
    28
    Nov 22, 2016
     
  17. JonBubo

    JonBubo Member

    47
    1
    8
    Apr 11, 2019
    Not from opinion but you are certainly allowed yours. If not just a comment, please present sources as I am doing.
    I only make statements that are backed up by research and credible sources. Dr. Richard Gacek's experience was both from in the lab and through his clinical experience of patients who presented with MAV and treated with antivirals... many saw a lessening or cessation of symptoms. I added that tackling a viral infection from more angles than just HSV suppression of a pharma is not a stretch in logic to conclude that it would be more successful. I also present all the below associations are worthy of looking at the correlation of EBV alone with migraines (as well as cytomegalovirus and others):

    see Pubmed

    "...Consideration should be given to serology for Epstein–Barr virus, West Nile virus, and Lyme disease"

    Diaz-Mitoma F, Vanast WJ, Tyrrell DL. Increased frequency of Epstein-Barr virus excretion in patients with new daily persistent headache. Lancet. 1987;1(8530):411-415.

    New daily persistent headache....
    "Some authors have associated NDPH to Epstein-Barr virus (EBV) infection. In a case-control study, Diaz-Mitoma demonstrated that 84% (27) of 32 NDPH patients had evidence of active EBV infection compared to 25% in a gender and age matched control group"

    See EBV national headache foundation

    (note menieres.org does not support the positing of actual research web based links)
     
  18. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    In another post, you said that your rotated between these. What was your rotation schedule?
     
  19. JonBubo

    JonBubo Member

    47
    1
    8
    Apr 11, 2019
    No set schedule but here is what I did: keep in mind... this isnt necessary when you are still having attacks. This is an advanced concept for after you get your viral loads down and other pathogens mostly handled.

    background: Once I had utilized olive leaf by steadily raising dosage to about 6 pills for weeks without a reaction. I went back down to 1 pill and started monolaurin. (layered with both) it did the same thing with die off for weeks, as I have EBV which monolaurin is particularly good for.

    Once I had finished climbing up and down the hill in dosage with those two, I bought oregano oil gel caps and used it for a bit just a bottles worth (with a small maint of OLE or monolaurin to diversify).
    note: you want to take probiotics from time to time away from antiviral dosage as they do affect good bacteria as well. Once the bottle ran out I took a bottle of tincture of lomatium (good for EBV) til it was finished. then a tincture bottle of cats claw. rested then black seed. now I mainly rotate in booster doses once every few months (not scheduled) (say 3 scoops of monolaurin for a few weeks) rest for a month or two ..then switch to 4 - 6 pills of high strength olive leaf. All the while taking 3 grams of lysine and 1 - 2 grams of C. Each one clears or cuts down a different set of pathogens. even going back on an acyclovir for 1 - 2 months once or twice a year. When not doing this, I just cruise with 1 pill of 2 items to maintain. My goal is to clear as much as I can as I have had mold, candida, viruses etc. A few sessions of ozone therapy are on the horizon as getting into the blood is another way of getting what pills alone cant reach. Just do what you feel is right for you. In the beginning, clearing with OLE or monolaurin + lysine and C is plenty. no need to obsess. this is more turbo boosting while doing a maintenance program. Each time you end up lowering the plateau of pathogens in your body.
     
  20. Brother_of_Nool

    Brother_of_Nool Member

    66
    3
    8
    May 24, 2019
    New York
    Yow! Thanks for the info. I'll play it by ear (no pun intended).
     

Share This Page