There seems to be a lot of people recently diagnosed here and confused. Here are my suggestions: I doubt you will find a cure but if you have patience and keep trying, you may very well find a treatment that gets you to a comfortable remission. The first thing I did was to give up on doctors. Then I tried the MEGA Vitamin C thing, where you take so much vitamin C you get diarrhea and then back off a bit. It is not comfortable, very gassy, but damned if it didn't work! It gave me hope that maybe I could fix this myself, maybe I had a life. Next I tried the JOH suggestions of many supplements, it helped but didn't get me to a good spot. Next I read the "Heal Your Headache" book - That helped a lot! And I still follow that diet somewhat. It's a very good book. I also tried a very expensive treatment from a lawyer in Australia (desperate people do desperate things) - it was a waste of money and time. Somewhere in there I managed to source AntiVirals (Famvir mostly) and they, along with Heal Your Headache suggestions have given me back my life. I still take a maintenace dose and increase it if things get out of wack. So, there is hope. Currently I have tinnitus of fluctuating intensity. Today I have reasonable hearing in my bad ear, last week I had no hearing. I'm not sure what exactly caused the bad hearing week but it improved. This happens from time to time. 80% of the time, my hearing is at about 50% of good, never better, sometimes worse. One bad trigger for me is a certain type of stress which, when combined with careless eating and shortage of AVs can cause me grief but so far I've always been able to get back to "normal". So, my point is, do not despair. There are many things that you can do, starting today, to fix yourself. Oh, and as June says, keep a journal. It is amazing how quickly you forget little things that could be very important in your quest. Good luck to you!