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Vertigo from laying down & stretching

Discussion in 'Your Living Room' started by Glenn, Nov 20, 2018.

  1. Glenn

    Glenn New Member

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    i also think something is going on with my neck because i just layed on my bed sideways looking up at the screen and i actually felt a vertigo wave from my neck hit me for a couple of seconds. coffee is also not good. always makes me nervous and light-headed. i also think getting off my butt doing a little exercise without walking to fast and heavy helps to take my poor mind off this awful disease. it seems even thinking too much about it now can trigger a little dizziness and light-headed fog. sorry if i ramble too much here but this seems to help to keep the load lighter.
     
  2. Glenn

    Glenn New Member

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    i remember now when i was about 10 or 12 years old, my mom took me to an ear doctor and she told me afterwords that the doctor said there was a lot of kitty litter in my ear and that i had a abnormally shaped inner ear or ear drum. i thought that was an odd thing for the ear doc to say. could it even be possible i could have a malformed inner ear?
     
  3. Glenn

    Glenn New Member

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    papa joe; I think everyone should get a PET scan with this disease. I will ask the ENT. There is an inflammation going on you are sure right about that! I wonder if the root cause is neurological though. It seems our five senses are over sensitized and inflamed that could not only be coming from the ear.
     
  4. Glenn

    Glenn New Member

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    Papa Joe; what is your take on dehydration? The EMT in the ambulance said I was dehydrated. That we should drink one half of our body weight in fluid ounces everyday. when I drink enough, it seems to exasperate the light-headed and dizziness.
     
  5. PapaJoe

    PapaJoe Member

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    If you weren't in a mood to ramble, you wouldn't be here. Part of what I've found in the last nine years is that your mental attitude takes a complete dive. But, at some point you may be able to separate the deadened feeling that come from the disease, with the anxiety it produces.

    You're not here because the universe hates you. You have a disease. The unfortunate part is that doctors don't know what causes it and there seems to be little desire in the medical community to find out.

    And unfortunately, it's not a quick fix. When I first went wheat-free, it took ten days before I saw positive results. This is life changing, and you've got a bad case of it.

    Here is a post I made on the Reddit Candida forum, it'll tell you my story and maybe you'll see some things that ring a bell. PapaDisc's Candida Intro : Candida

    In any case, we come here for support. I got it in 2009/2010, and I'm here now to pay it forward.

    ===========

    Don't do heavy exercise, it'll drive you over the edge. But do walk, preferably easy walking several times/day to keep your circulation going. No big hills. If you have access to a pool, gentle water walking is very good.

    You want to drink as much water as you can, add a bit of lemon juice to the water as well. I also like to drink unfiltered apple juice for the pectin, but try to avoid other fruit juices for the time being. Completely eliminate sodas (hi or low cal). Artificial sweeteners have been found to damage the gut. Tea/Coffee is OK if they don't trigger. If you can tolerate milk, coffee and half & half work. don't do fat-free or 2%, you actually want the milk fat, if you can tolerate it.

    Eat plenty, because if you cut calories you'll likely have trouble with constipation. Keep it going.
     
  6. PapaJoe

    PapaJoe Member

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    It is possible, and an ENT should be able to verify. That may help explain your history of sinus infections?

    As far as a PET scan, I've read that it is the best technology for identifying growths in the soft tissue. MRI certainly doesn't. Make sure you give the ENT your full history with respect to the inner ear, your history of infections, and your concern that these biofilms may have spread to your ear.

    Your ENT may pooh pooh that idea. If so, consider finding another ENT.
     
  7. Glenn

    Glenn New Member

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    Will do! I will try to demand a PET scan. Happy Tanksgiving papa Joe. I feel tanked, but should count my blessings past and future. This is not a disease for sissies.I feed a lot of birds here everyday, but I cannot hear them talk at all anymore. When I was waiting for the doc and prescriptions yesterday, I did not hear them call my name. people have to talk very loud. This morning I heard a bone move or something in my ear with a tinging sound when i woke up. You know what, I am going to write down everything we said on this thread and present the list to the ENT.
     
    Last edited: Nov 22, 2018
  8. solari

    solari MM.org Janitor Staff Member

    Admin Post
    You may also want to ask for a referral to an upper cervical specialist since you've mentioned your neck several times. That could very well be the culprit.

    I hope you have a Happy Thanksgiving!

    Ray
     
  9. teesdale

    teesdale Member

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    Glenn, in addition to what Solari and PappaJoe have stated, you may want to see a physical therapist. They can determine and resolve BPPV if that turns out to be involved. They can also work on your posture and get you moving. You appear to have a sedentary life style which is not helpful with this condition.

    Best of luck and health to you.
     
    • Agree Agree x 1
  10. PapaJoe

    PapaJoe Member

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    There are a couple of lists on here on menieres.org website of scientific papers that I compiled, one supporting the use of antiviral medications for treating MM, and another supporting the use of antifungal meds.

    I'm hoping to do the same for biofilms. It's taken me nine years to be sure enough about this to start posting here again, now I need to organize the research. By bringing it here, I get a very welcome critical look from people who've dealt with this far longer than I.

    You are, rightly, feeling the world crash around you. Unfortunately there's no easy solution to real life while you're dealing with this. But you can get it under control eventually, and then get on with your life.
     
    • Agree Agree x 1
  11. PapaJoe

    PapaJoe Member

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    Yes, get those checked.

    FWIW - my neurologist wanted me to have neck surgery to relieve neuropathy in my arm and my feet due to a stenosis in my neck. Fortunately, neither of the neurosurgeons thought I needed it.

    In the end, clearing my dental infections has stopped the neuropathy. I'll still get a little when inflammation is high, but it's 95% improved.
     
  12. PapaJoe

    PapaJoe Member

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    Do you have any heart arrhythmia? PVC (Pre-Ventricular Contractions)

    This is when your heart feels like it skips a beat, like it freezes in your chest for a second. Doctors may note it but not consider it particularly interesting.
     
  13. Glenn

    Glenn New Member

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    Thank-You very much Folks! I saw the ENT yesterday for the first time since my intense vertigo attacks. He read the suggestions I gave him off this thread I had written. First, he gave me an audio test and said my hearing was terrible. Then, he looked in my nose, and said I need medication for my sinus's. Then, he looked in my ears and said they were full of wax and wanted to clean them, but due to my dizziness, light-headedness, and fog, he said he would prefer to give me medicine first, and gave me 5 different types to take for a week until I saw him again. The meds he prescribe are:
    Meclizine 25 MG 3xs a day for dizziness.
    Clarithromycin 500 MG twice a day antibiotic.
    Loratadine 10MG every night at bedtime for allergy.
    Montelukast SOD 10MG once a day for breathing and allergy.
    Fluticasone nasel spray twice a day for nose.
     
  14. Glenn

    Glenn New Member

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    I am not experienced in this matter, so I will go along with this for a week, then maybe I will know more about this doctor's plan of action. After all, he has been in this business for many years. I have not experienced intense vertigo for 2 weeks, and only become dizzy when I move my head left, right, up, down, for too long. The rest is nerves and anxiety playing tricks with my body.
     
    Last edited: Dec 6, 2018 at 2:26 AM
  15. Pupper

    Pupper Member

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    That's rough Glenn.
     
  16. Glenn

    Glenn New Member

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    I was wondering if anybody had any side effects from taking the Meclizine for dizziness. or the antibiotic I listed above, or any medication i listed. thanks
     
    Last edited: Dec 6, 2018 at 2:24 PM

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