I’m almost 50 years old, who had encephalitis at 18 months. Drs think that’s where the destruction of my inner ear/Ménière came into my life. I struggled as a child with learning. I had to work twice as hard for the occasional A, many B’s and C’s. No matter how many note taking classes I took in college, I couldn’t get information to stick well enough to pass my nursing classes. I gave up and although I knew I was not dumb, was very realistic as to my super powers which were the ability to communicate/sales. Vertigo began at age 21, as it increased and I had a baby at 25, we decided to try the shunt. It was an unmitigated disaster. I lost all sense of balance and took PT and 8 weeks to get me upright. Second worse thing in my life to ever happen to me. My dr literally walked away from me and tossed me aside. I knew there was a chance it wouldn’t work, but young and hopeful. Over the past 25 years, I can count well over 75 times generously where I have gone all out vertigo, give me Clonopin and sleep it off type. I carry it with me for emergencies and not counting those off balance dizzy feelings. I’ve had every test, MRI, PT plan, Epley Maneuver, hearing test etc… It all points to Ménières but I swore I’d never do surgery again. Well since Feb, my vertigo attacks are weekly and this last one I’m not coming out of. I’m upping my Clonopin which knocks me out of my misery, but is not living. Went to a new ENT, we recently moved in the last 2 years, he has me on steroids that have increased my anxiety and dizziness. I want to throw them away, but am making myself finish the last 3 days come hell or high water. Lol We then are doing the only other thing that’s never been done and that’s allergy testing. I’m not hopeful...I feel like this is the end. If vertigo is this bad, then I can only surmise I will have to do a drastic surgery and lose the rest of my hearing without a 100% chance of my vertigo going away forever. I’m very lost, but I’m only 50. My last child is leaving for college in the fall, I have future dreams, but cannot rely upon myself bc of this Ménière’s disease which has held me back a lot of my life. Does anyone have any input? Am I missing something? No I have not discussed surgery with my new ENT, but I know my body. I’m otherwise physically fit. But when is enough...enough?