What’s left…

Jen - you are not alone. I was diagnosed 12 years ago at 28 years old. Its been a hell of a grind. I had the shunt surgery 3 years ago... 30 days before my second child was born. It did not work at all. Made things worse.

I know its hard to think about the future. Most of the people on this site are 20 years older than you and at a much different point in their life.

There are some young people on here who have gotten labby's. I would seek them out and get their advice. I have been trying to hold off until I'm 50 to get the labby but their are many days where I'm ready now.

Keep your head up.

 

Mac I love your posts and I love your research and encouragement you have for our new posters. But...not a fan of your above comment about the older generation on this site. I am sure you meant no disrespect. We the 20 plus years older group know exactly what you mean and what you ar going through. Been there so don't count us out. And yes there are younger ones going through the exact same thing we went through. And they have made the same choice we made.
Hold off to 50? When you could have your life back now? Have to think about that.

 

Ha. Coming at me Redwing. Jeez. I am just trying to help.

She mentioned she can’t imagine living 45 years like this. I’m guessing she’s 45.

So as someone who has had this since 28... I know what she’s talking about (45 years) better than most.

As for the labby... I would have to go on long term disability if I had a labby. I have a mortgage and two kids. 4 and 2. If I was over 50 I’d be in a better financial situation. I’m not in the majority on this site in terms of my situation. You know that.

This however is not about me. It’s about Jen. She sounded down and out and I just want her to know she is not the only one with a long haul ahead. Try to stay positive and know things will get better.

Jen - keep your head up!

 

Mac you know how I feel about you and this horrible situation. I am not coming after you I promise.
Why would you need to go on long term disability if you had a laby? I am missing something.
And I totally agree with you keep positive and keep your head up Jen.

 

I could not do my current job with one ear. No chance. I would have to go on disability to support my family. Getting hired for a new job (at anywhere close to what I make) with one ear in your 40's is no easy task as well.

In any case... I think I will stay in my lane going forward. Stick to getting ignored when I post research updates. haha.

I'm only trying to help folks.

Jen - Keep your head up. You are not alone.