What to do???

Discussion in 'Your Living Room' started by hopefulstill, Feb 10, 2016.

  1. hopefulstill

    hopefulstill Member

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    I had my MRI with gadolinium contrast. It did not show anything remarkable. Just my same Dx. of Meniere's. My choices now are gentamicin or shunt. I am not a good candidate for shunt therapy, as I am hypersensitive about my body. I could not use an IUD because it felt 3 feet high in me!!! I am reluctant about the gent. injection as it is destructive.
    I tried the antivirals for 7 months. I was faithful to the JOH supplements, with 6,000 of Lysine a day with 500 mg. of Valtrex. I thought it was helping for a while, but I think it was just my cycle. About every 6 months or so, I get a respite and feel normal.
    Please post your success stories with anything you have tried other than the above. I am feeling somewhat better from the upper cervical chiropractic. I was thinking adding acupuncture to the mix.
    Any secret formulas out there????
    Thanks
     
  2. Vicki

    Vicki Guest

    try Valtrex again using the proper doses for Meniere's
     
  3. scott tom

    scott tom Active Member

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    Unfortunately, it is rare that someone comes on here and says that JOH saved their life.

    But you did not do the Valtrex properly. You should take 3000 mg for at least 6 months before you give up.
     
  4. hopefulstill

    hopefulstill Member

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    I have not found a dr. that will prescribe it.
     
  5. hopefulstill

    hopefulstill Member

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    Actually, the doctor did say he would prescribe them if he found evidence of inflammation of the nerve which would have shown up on the gadolinium contrast MRI. He does not find it that often.
     
  6. Marta

    Marta Active Member

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    I also was not prescribed antivirals by my doctor so I purchased them online without a prescription. It's an expensive treatment but if it is going to help I am ready to pay for it . Perhaps you might give it a go.

    https://www.getpharmacypills.com/
     
  7. scott tom

    scott tom Active Member

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    Shop around for another doctor. Even a dermatologist can script it. Just tell them you have genital herpes flareups or shingles. They rarely ask for records.
     
  8. Marta

    Marta Active Member

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    This is what I did 2 days ago. I visited an online doctor claiming I have genital herpes. Got confirmation today that the drug has been shipped ! And it's twice cheaper than the first one I bought from the site mentioned above.
     
  9. Vicki

    Vicki Guest

    interesting Marta :)
     
  10. Marta

    Marta Active Member

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    I know. I felt very bad lying but after all it's all about my well being and ... bank account
     
  11. Vicki

    Vicki Guest

    I totally understand :)
     
  12. BumbleBea

    BumbleBea Fallen Angel

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    There are threads here about Dr. gAceks studies and another I think that people have printed to show their Drs and it has helped some. I remember someone saying to schedule extra time with your Dr if you're bringing research.

    Maybe someone will reach out to you about that.


    As far as the way you're getting them, I'd be concerned about manufacuturing. Do course you need to follow the dosage needed.

    I'm excited for you and I hope this does it for you.
    Just be careful.
     
  13. Vicki

    Vicki Guest

    hopefulstill ..were you able to get a script for an antiviral yet?
     
  14. Marta

    Marta Active Member

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    To all lovely people who have found relief from antivirals , are you also taking JOH supplements?? If so, which ones??
     
  15. Vicki

    Vicki Guest

    I only take acyclovir and been on my maintenance dose (800 mg)for about 2 years now. But I do increase temporarily when needed, when something weakens my immune system.
     
  16. serbian

    serbian Member

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    I am taking both maintenance dose of acyclovir and full JOH regimen (one Vinpocetine, MSM, Lemon Bioflavonoids, Gingko and Vitamin E, and two of Lysine and Vitamin C per day). Just in case :) It is eleven months since my last vertigo and counting...
     
  17. scott tom

    scott tom Active Member

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    No. There really is no point. It adds no benefit for me.

    Furthermore, there are two indisputable facts about supplements:

    1) They have almost no quality control. Study after study has found that the majority of supplements either don't have the promised ingredient, or have an unwelcome ingredient, or both.

    2) Even the ones that have the ingredients as listed are often so watered down that they can't do anything for you.

    Does this mean all supplements are bad? No. But it's so hard to know for sure what you're taking when no one is checking.
     
  18. John of Ohio

    John of Ohio Active Member

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    For you, no matter what evidence might be presented, your two "facts" are, indeed, "indisputable."

    Nonetheless, the firms selling the components of my regimen have exceptional quality-control procedures and their branded products DO have exactly what is labelled. You are welcome to your imaginary perspectives, on both the efficacy of my regimen and the questionable quality of its components.

    For you, it is "...so hard to know for sure what you're taking..." You have it in your mind that VitaCost, Swanson's, and Nutrition Express have been marketing sugar and starch pills now for many years, fooling people who just aren't as smart about these things as you are. But of course, you will be unable to find a single incidence of product insufficiency with any of these three firms.

    Once again, I have over 250 personal accounts from users of my regimen, over 87% indicating that the regimen provided welcome symptomatic relief. I suppose you think those people, too, to be making that up, that it's all a placebo effect and when they sat down to write their emails or postings telling in detail how the regimen did or did not work, the majority simply had it wrong; that even though they claimed to be able to once again live a rather normal life, they were only fooling themselves.

    By the way, except for the attorney general of New York's faulty "check for DNA" study of A FEW (not any majority of supplements --- none of which were from the firms in my regimen), please post, if you would, any of the "...study after study..." you referred to. Please, show us your real evidence that the components of my regimen are mis-labelled. Should be easy. You claim there has been "study after study."

    (For those unfamiliar with my regimen and its components, scrutinize it here: http://www.zoominternet.net/~kcshop/JOH.pdf )

    --John of Ohio
     
  19. scott tom

    scott tom Active Member

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    I have no desire to debate you on this, as it's already been acknowledged repeatedly on this site that the quality control of supplements is a joke. Your regimen didn't work for me. It didn't work for the two dozen or so patients that my doctor prescribed it to. Her success rate was 0%. Yours is magically 87%, although you provide no actual raw data to back this up.

    I'm happy for you and anyone who finds relief, even if it's a placebo. I really am. The goal we all want is for relief.

    Antivirals have a success rate over 90% at several major hearing centers. The drugs are strictly controlled and you know what you're taking.

    Everyone has to decide for themselves what approach to take.
     
  20. scott tom

    scott tom Active Member

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    Btw, my disagreement with you is not meant to show disrespect in any way. I know you're one of the good guys, and you're doing what you think is beneficial.
     

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