Yet Another New Diagnosis & Questions

Hi there. Thanks for reading. Today I got my second click test...you know what I mean right? I have hydrops in both ears now. Two years ago after a minor surgical procedure I developed severe vertigo and could barely walk. I would crawl to the bathroom and was constantly nauseous. I got vestibular testing at that time and was diagnosed with atypical meiners. There was a lot of confusion if that was even a real diagnosis. My neurologist was skeptical. He thought, vestibular migraine because I have a history of migraines. I have some very minor hearing loss in one ear, at that time. I did the low sugar/low salt diet and had no more episodes of vertigo. Prior to that I had 2 different episodes of vertigo that lasted a few hours. Over I time I figured, yeah, I don't have meiners and stopped the diet and was fine. One month ago shortly after getting botox that I get every 3 months for headaches do to tmj issues, I bit into a stinking a carrot. Immediately that triggered nerve pain shooting from my ear to cheek. Anytime I ate or brush my teeth it triggered. Then it settled into a constant migraine. Out of desperation I drank a glass of wine to try to kill the pain. That triggered an episode of severe vertigo with vomiting that lasted for hours. Since then I've had ear pain/ fullness and a constant low level dizzines punctuated with periods of more intense dizziness. The brain fog that goes along is terrible. So I'm seeing a new ENT who made me do the test before he would even schedule with me, and I got the results today. So I'm thinking I may not have confirmed menieres but I do have hydrops and I hope it's ok that i"m here. I realize I need to be serious about it no matter what it is because it's really effing up my life.

To make things more complicated my I'm still waiting to get back into oral/maxofacial clinic and get new imaging on my jaw. And am still on a soft food diet. I've lost 10 lbs this month due not being able to eat without increasing the pain. How do I figure this out? I'm a mess. I'm sorry, I'm so foggy today and feeling so dizzy my spelling is atrocious.

 

Hi SurferGirl,

There is so much we don't know about these conditions yet many doctors go full arrogant mode and dismiss possibilities. I think there is a connection. The areas are so close together and I think the inflammation spreads. The spasmed muscles constrict nerves and blood vessels. I doubt the oral surgeon will be much help but it's worth trying. Thanks for sharing.