Determination, Courage and Strength

Discussion in 'Your Living Room' started by dpa62, Apr 4, 2009.

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  1. dpa62

    dpa62 Guest

    Yes I agree,
    this forum has been a lifesaver for me. So many people here are very supportive and they really do care. The database that we have here is also chalked full of useful information. I also encourage you to explore the forum and the database here for answers to your questions and feel free to write us anytime.

  2. Aladdin

    Aladdin Guest

    just wanted to say hello and hope this post finds you well ... I'd say filled with sunshine but if youlive in CA - you should have enough of that :)
  3. dpa62

    dpa62 Guest

    Yes Alladin, we have been drenched in sunshine, unusually high humidity and to be honest I wish it would cool down a little because my house is not air conditioned. I would be happy at the North Pole right now.

  4. CandyinColorado

    CandyinColorado New Member

    Thank You to all of you and especially Linda.
    Talked to my sister yesterday and she's in good spirits now. Hope the dr. on the 27th has good news for her. They did an MRI and an ENG plus a test "blowing air" in her ears. Then they also got her eyes to move wierdly when she was made to turn her head to the right. She can't do that nor can she tilt her head up to use her microwave.
    I'll let you guys know what goes on after the docs visit on the 27th.

  5. hollymm

    hollymm Me, 'in' a tree.

    Hi david,
    Determination I have lots of. It's the courage and strength that oft times fail me. This forum does help. I found it recently and check on it two or three times every day. My determination is what lead me here. I'm hoping courage and strength will come through people like you who deal everyday. It makes me KNOW I'm not alone.
  6. Chariss

    Chariss New Member

    Every one seems so very brave on this site. Your words definately help to make the day better.
  7. Kierralee7

    Kierralee7 New Member

    David you and I have something in common... having to deal with two health issues. I have Crohn's and have had a total of 37 operations and have even died on the operating table... spending 2 years straight in the hospital.. well I can tell you that was like being in a prison... and yes you are soooo right... Meniere's is far worse than my CD, far far worse. I wish you well, blessing and strength.

  8. jwebb

    jwebb New Member

    Wow, I needed that!

    Thank you so much for your strong words. I'm fairly new to this site and have been fighting this disease for 3 years with 3 young kids, a great Husband and a very understanding employer. With that being said I get so frustrated and down. I am a fighter by nature but feel on bad days that it might be easier to stop fighting.

    I so appreciate your strong words of encouragement as so much of what is on the forum is hard even though I know it is the reality of this disease.

    Thanks again for the boost and the best of luck with your job and health.

  9. Trish2009

    Trish2009 New Member

    Hi I am new to this site , I am relieved and saddened to find others who are suffering with this disease.I was diagnosed at 32 I am now 40, I have had my ups and downs but with medication and a strick diet I managed to live a almost normal lifestyle until recently. I woke one morning about a month ago and hit the floor unable to get up, I have been off work for the past four weeks, they tried to tell me I had suffered a stroke but I knew this was not it at all , so with insistance I was able to see a ENT specialist who aligned my crystals so I was able to stay upright better and then informed me about the pressure building behind my eyes, I have significant hearing loss since my last major flare up years ago, I have now gone from a reading glass to tri focals due to all the pressure. The meds are no longer working as needed, and the crystal alignments are not working becouse of the pressure build up as well, so they are going to try injections into the inner ear thru the membrane, I was wondering if anyone has had these and could you give me any advice at all? I could use all the advice and support you all have to offer becouse living in the state I am in right now is just not an option!
  10. CarolineJ.

    CarolineJ. New Member

  11. Linda1002

    Linda1002 New Member

    Welcome Trish!

    More people will see your question if you start your own thread in the Living Room.
  12. scprobation07

    scprobation07 New Member


    What kind of injections are you talking about?
  13. gardenfish

    gardenfish New Member

    putting Carrollmoore on this D,C & S topic - inspirational person that she is.
  14. koreajoe05

    koreajoe05 New Member

    David, what an inspirational message. After reading what you have gone through my troubles are quite small. What courage, determination adn strenght whish you could bottled it and make it available to the rest of us.

  15. Tinamci

    Tinamci New Member

    Hi, this is my first time here. I have MD and still coming to grips with it all. I had a horrible ENT and no explanation to what Menieres was, just "learn to live with it". So tomorrow am seeing another Specialist so hopefully he will be more helpful. I have all the "normal" symptoms but dont understand the "lightheadedness" Is that part of it?

    Havent worked now for 4 months as I am a nurses aid and showering olderfolk is just out of the question.
    I dont know anyone with this disease so hopefully might make some friends online to discuss it with.

  16. mcdizzy

    mcdizzy "Now Who's the Dumbass Dumbass"

    Welcome to the forum Tina. :) Best of luck with your appointment tomorrow. Lots to read and learn here as well.
  17. hollymm

    hollymm Me, 'in' a tree.

    Hi Tinamci,
    Yes, lightheadisness can very well be a part of it. Each individual may have a number of sympyoms. I for instance do not have vertigo and from what I've heard, don't want it; however I do have severe tinnitus and dizziness with some of the other sysptoms. I do have 'brain fog' which is a combination of dizziness and inability to concentrate.
    You'll find, once you start brousing around that many people suffer from many forms of the disease in different degrees.
    Anyway, welcome to the forum and good luck on your next doctor's appointment. Ask those questions and don't leave until you get the answers you need! They may not be able to tell you everything but they should sure be able to tell you more than you've gotten so far. Again, good luck and let us know how it goes.
  18. David09

    David09 New Member

    Thanks everyone for the nice replies. I'm very sorry that some of you suffer so much. This disease is terrible but if you suffer from another disease on top of this one then it takes a lot of fighting. I know you get tired of fighting sometimes but just think what would happen if you were to give up. We have to fight in order to have some sort of life and some degree of happiness and peace in our lives. All I can say is keep up the fight and have faith.

  19. Lorrie K

    Lorrie K New Member

    I echo jwebb's thoughts. Lately I feel it might be easier to just give up. After joining this site several weeks ago and reading all the supportive posts I feel I can continue the battle. Have had two attacks two days in a row and instead of wanting to give up my first thought was damn, not again, I'll just have to ride through the storm.
  20. FanofFinz

    FanofFinz New Member

    I was just diagnosed with Mieniere's disease 2 weeks ago. I am so glad I found this website to see that I am not the only one going through this. Glad to see your determination to live your life to the fullest. I am still coping with being diagnosed with Miniere's and trying to figure out how I will deal with everyday life. Once again, glad to see you fighting to make everyday great!!


    Brad Smith

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