Just watched a segment on that. I am sure it will be replayed in the future if someone wants to catch it.
June - was it Mal de Debarquement Syndrome (Debarkment Syndrome)? That's what I have...I'd be interested in seeing the program.
Yes. The dr who diagnosed it called it 'disembarking' syndrome (unless my hearing failed me) but they also called it mal de debarquement syndrome. It was the first half hour of the program on tonite at 9 or 10 pm. I found it on their website scheduled for Jan 30 also. http://health.discovery.com/fansites/mystery-diagnosis/mystery-diagnosis.html Jan 30, 5:00 pm 60 min(s) Mystery Diagnosis The Woman Who Couldn't Stop Rocking 35 year old Rosanne Jensen begins to experience bizarre dizzy spe
Hmmm, I've been bothered with that since I was a little girl. My mom had it as well, though neither of us knew what it was. (I had it for three damn days after riding Space Mountain at Disneyland Paris twelve years ago.) I best hie meself to the doctor and discuss this with him. I didn't read where drop attacks occur with this, which I suffer as a result of the Meniere's.
Here is a very good description and report on MdDS, by Dr. Timothy Hain... http://www.dizziness-and-balance.com/disorders/central/mdd.html
Just saw the show.... After a normal plane ride, Rosanne Jensen kept feeling as if the floor were moving underneath her, or that she was on a boat, rocking in the waves. She was ill for six years, and not one of her specialists could diagnose her. Every single test she was given - including an ENG - came back normal. Her stupid jerk of a now-ex-husband kept saying that he didn't believe her and accused her of making the whole thing up. She became more reclusive, deciding to suffer in silence. Her marriage suffered, as did her relationship with her children. One day she had a terrible panic attack at work, and the dizziness came back with a vengeance. Ironically, it went away when she was driving. In desperation, she turned to the Internet, and found what could be her diagnosis. She showed it to her latest doctor, and he agreed that she needed "the big guns..." and referred her to Dr. Mitchell Schwaber in Nashville, Tennessee, http://www.nashvilleent.com/providers/schwaber.php who suspected right away that it was Disembarkment Syndrome. He put her through computerized dynamic posturography (a platform test) and it was quite apparent that she was suffering from Mal de Debarquement Syndrome or Disembarkment Syndrome. This is due to damaged or faulty gravity receptors in the inner ear. They kick in when the body is in motion, but unlike normal systems, they don't readjust to stable ground. If there is continuous stimulation of these receptors - like in driving - the symptoms go away. Dr, Schwaber says that this is an extremely rare condition, and that he only sees perhaps one or two patients every 2 - 3 years. It often comes after being in a boat or on an amusement park ride. Unfortunately, there is no cure. Research is being done with medication or surgery, and perhaps in the future there will be a treatment. He did stress that often vestibular disorders can cause anxiety, and anxiety disorders can cause vestibular problems. The symptoms can last for years, or disappear spontaneously on their own. Rosanne's message to everyone: Don't give up! Keep searching until you find the answers.
