New article published in "Hearing Health" on Menieres Disease

Discussion in 'Your Living Room' started by solari, Apr 12, 2008.

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  1. solari

    solari Administrator Staff Member


    Recently, the folks at the Deaf Research Foundation asked me to write a sidebar story about coping with Meniere's Disease to accompany their doctor's story about the disease itself. They wanted it to be something positive, showing that folks can survive with it somehow. I readily complied and sent it in a month ago. Looks like it's now in print -- I received their magazine in the mail today so it's live, which means I can "reprint" it on now.

    It's nothing fancy -- it's rather short and sweet, but can hopefully give some folks hope in fighting the disease. Plus, some of you can show it to your friends and family to give them a good idea of what you're going through. I also wrote it to give a bit of publicity so more sufferers can find us, knowing that we've got a great group of support folks right here. :)

    The article is on our front page now and you can read it here:

    If you're at all interested in the Hearing Health magazine, you should check it out and subscribe to it. It's free and mailed out all over the country. The URL to the magazine is in the article above.

    Hope all is well and stay spin free!

  2. Caribbean

    Caribbean New Member

    Brings back many memories Ray, and so true, the "BEAST" can be held at bay if you follow the treatment remedy's that so many of us have found to be successful right here on this site!

    Thanks for the post...

    Be well / Larry
  3. June

    June New Member

    Thanks Ray. Excellent article. And thank you for this support group. It has helped me immensely in dealing with and improving my hearing loss. I will look into the magazine.
  4. peggoins

    peggoins Stop the world from spinning!!

    Good Job on the article Ray that just about says it all.. Take care Peg
  5. GinaMc

    GinaMc Me and my friend Sally :)

    Ray that is an excellent article and will really explain to people out there that may just be started with MM and will be able to relate to what your article says and will be able to find all the wonderful ppl here at

    Thanks for sharing it with all of us... and thank you for this great place to come and share our stories, it has helped me tremendously.

  6. LisaB

    LisaB New Member

    Great article, Ray.
    I don't know what I would have done without the support I found here. Lisa
  7. Bergie

    Bergie New Member

  8. sandra

    sandra New Member

    What a great wonderful article Ray. It does bring back memories not good ones either. Hugs to you.
  9. Linda1002

    Linda1002 New Member

    Ray -

    Thank you for all you do and for the support this site provides!
  10. jim1884again

    jim1884again advocating baldness be recognized as a disability

    Thank you Ray
  11. Mnme

    Mnme Guest

    Excellent article Ray. And thanks once again for this amazing forum.

  12. Willie Marie

    Willie Marie New Member

    Great article. By the way, thanks so much for the forum. It has been more help than I could ever express.
    Willie Marie
  13. annegina

    annegina New Member

    Thank you Ray. This forum has been the source of every good thing in dealing with MM. Don't know what I would have done without it. Reading your article is just another positive reinforcement!!!

    Thanks and God Bless

  14. Its Back

    Its Back New Member

    Thank you. It says it all.
    I am going to print it out and give it to a few people you just don't understand what we are going through.
  15. JessiesGirl

    JessiesGirl New Member

    Brilliant. You nailed it dead on, and have done all of us a service by doing so. Thanks for sharing!
  16. goldie

    goldie me and joshua

    Thank you so much Ray. That says it all
  17. lizzy

    lizzy Relax and enjoy the view

    Thank you for the great article and for this great forum. It has literally shaped my treatment plans.

    And I'll never forget my first BIG vertigo attack either. Eight hours of topsy turvy stomach jolting upset wondering if it will ever stop.

    Reading the boards, seeking support, finding the best docs available....keeping on the go no matter what the fearful brain suggests is the best medicine. Go. Do. Live.

    Last night I went to my first amplified sound theater since my first attack in a theater one year ago. My granddaughter was in Les Mis and i wasn't going to miss it so.....I had three different types of ear plugs which I experimented with while the orchestra tuned up. The best pair was the softer goey kind that I played with til I got them just right. So a little white goey stuff stuck to my hair like a white bubble gum....It was just a little noticeable with the Bose earphones clamped tightly to my head. When the battle scenes roared, I did get some big ole pulsatile tinnitus but today it is down to doable and I got to see a great play done by enthusiastic students. Worth all the funny looks I got messing with my ears, hair and earphones...we just gotta keep trying to live our lives.
  18. Ifishdizzy

    Ifishdizzy New Member


    Outstanding article...and it very well explains to those unaware of Meniere's about this monster we live with daily.

    Like you, I won't give up my business either, and even with the best medicines available, it sure is a struggle some days just to get by.

  19. susiemess

    susiemess New Member

    Thank you Ray for explaining exactly what all of us are living with! Your first vertigo attack brought back memories for me and I was only 14 at the time; scared and upset with what was happening to me. I wouldn't open my eyes because the room was endlessly spinning and I would throw up each time. My hearing was gone and I had a horrible loud roaring sound in my ears. The doctors during that time (1959) didn't know what was wrong with me. But they finally decided it could be Meniere's but they knew very little about the disease and really didn't know how to treat it. It took me two weeks to come out my first vertigo attack and some hearing came back in about two months. I was fitted with a hearing aid and told to learn to live with this for the rest of my life. I've seen many doctors who have helped me get through this. I chose to live in the hearing world that came with lots of ups and downs through out my life. But I'm 63 now and have learned to live with this 'beast' as best I can. This forum is wonderful place to come to remind me that I'm not alone. We can all stand strong and whip this "beast" with the right attitude, medication, surgery and exercise. It's so hard for people on the outside to understand what we are going through and I intend to print your article and show it to my husband. Thanks again
  20. KatiePA

    KatiePA New Member

    Great article, Ray. And many, many thanks for providing this forum. It has been invaluable in so many ways.


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