New Here. Is this a MAV site or Meniere's Site?

Hank,

How would you go about finding the cause?

For me, I am going thru the list of treatments. I am hoping one or multi-treatment will kick in. Maybe that is working the other way around. But that is the only way I know.

Thanks

 

The causes I know are upper cervical related, or viral related. So I would go at that systematically to see if the treatments for these conditions might help. If they do, then for all practical purposes you have found your cause. If they don't, that doesn't mean that those are not the cause. They might not be, but you may have inner ear damage that has not repaired causimg your symptoms. But that is where I would start.

I expect, but can't know for sure, that the mega doses of vitamin C, which Solari has tried successfully, have something to do with repairing damaged tissues. So that is an option to try as well.

 

High doses of Vitamin C can be an effective anti-viral depending on what you believe. People also take high doses of Vitamin C for severe allergies. I have not found any evidence that it is effective against migraines.

 

That is where I am stuck in the migraine part. The drug amitriptyline does not seem to be kicking in or not giving the relieve I want. I am also on all those diets no gluten, no diary, lo salt migraine diet. Not sure whether I don't have enough dosage or given enough time. The doctor won't bump me up. I have asked twice. I am playing it by the doctor since I need her to sign all my insurance forms. Played it the other way (you know bringing all meniere info from forum has back fired quite bad). I know I need a new doctor. It is a little difficult up here in the great white north.

So carnyard I am trying the C route. I am up to 19gms and continue to see what happens. There is something happening but still nothing conclusive. Also doesn't help with my insomnia where I don't sleep for days. My inmune system is pretty crappy right now.

 

uspin, I apologize I am dumping on your thread.

Dave

 

Just my opinion so take it for what it's worth. If C works for you, I think you have your answer between Meniere's or MAV.

Have you tried Melatonin for your insomnia?

 

carnyard,

I really appreciate your opinion carnyard. Also hanks.

Melatonin has zero effect on me. I am using Rhovane(sp). Even that has limited effect on me. Sometimes it works sometimes it doesn't. Getting inmune to drugs.

 

Is it anxiety that keeps you up at night? Have you talked to a mental health professional?

 

I am sure I have a bit of anxiety not sure how much. I am also working with a mental health professional. That is taking time and will be continuing for awhile.

What I believe is my sleeping problem maybe genetic (sounds unbelievable). Three out of 6 sibling have this troubling problem. My father had the problem. The sleep problem comes and goes. Have not found this correlate directly to stress. I can go for months fine then suddenly I would stay awake for a week to two (maybe sleeping 5 to 10hrs in a week). I have gotten use to this but I know in the current situation, it is definitely a set back to combat what I have.

 

Proper sleep is a critical part of the body's healing cycle. Whatever you take, medications, supplements, chiro, diet, they're not going to be as effective without enough sleep. There are sleep specialists in the States. Not sure about Canada.

 

That is one reason I am seeing the mental health professional. I know my health would be a lot better if I can sleep properly. I envy people who sleeps like a baby. My oldest brother sleeps like a log and is in much better health than me. That is part of life as this disease is and I have accepted that.

 

Dave, the C didn't help with my insomnia (at first), but the last two nights, i've had tremendous sleep for 10+ hours each night. I woke up feeling incredibly rested. And both nights, didn't have to take an ativan halfway through the night. I also was able to sleep without ear plugs for the first time last night.

I'm still new at this, and this is ongoing, but i've already gotten more relief than i hoped for. I can now drive, teach my classes without worry, feel less anxiety, have cut back on the ativan, and my tinnitus is not bothering me (although it's not lessened in intensity). I now feel like i can safely take myself through a productive day without having to bail on my duties.

Haha... that got long-winded, but i'm in a great mood. Anyway, just keep at it and have patience.

 

CGR,

I am truly happy for you CGR. You continue with your success.

I will keep chugging along and keep you all posted.

BTW I am so glad the mud slinging stopped and everyone is more productive now. Sometimes I thought that day won't end.

 

Ib worried for a while that I didn't have Menieres and that it was something else. But when I had the ESD surgery last week the docotr (who is specialized in meneires disease) said I had the perfect combination of signs of menieres. Ie vertigo, spinning to one side only, non positional, hearing loss, fullness, ringing, but further was the signs upon surgery. I had a ecess of boney mass at the base of my cerebellum that he said was a tell tale sign of menieres and also bright red blood vessels literally crowding each other over my cochlear. So after hearing this I decided to trust my doc. I really am not against trying anything at all and I truly believe in homepathic measures. I'm just one of those that believes if my doctor sees thousands of patients for my disease from all over the country and he's willing to listen to me then I have to trust someone certainly not myself as this disease is slowing turning me mad! Btw anyone here is going to think I'm dumb but what is MAV? (Still catching the acronyms)

 

alenasmommy

IMHO, I would follow everything the doctor say but will stop them when they suggest surgery to the inner ear. There all a host of other alternatives to try out suggested on this forum that are all non-invasive. Definitely go thru them before you let the doctor 'destroy' your ear. MAV is migraine associated vertigo.

Dave

 

Thanks dave! I am thinking about starting the vitamin c regimen tomorrow when I get paid.....still trying to find out how to but it though.....I heard powder but I have a big taste issue.....sorry this has nothing to do with the tread!

 

Alenasmommy, here is the way to do it:

http://www.menieres.org/forum/index.php/topic,28571.0.html

 

A boney mass at the base of the cerebellum a tell tale sign of Meniere's? Anyone with a clue what this doctor might be referring too? I have never read, nor heard, anything about boney masses at the base of the cerebellum. Is that part of the skull, as a bonry mass, that he was referring too? What?

 

DaveTo, are you outside much during the day? Do you get any exercise?

 

Taximom,

I used to be very active, hockey, golf, badminton etc. Since this last bout, I have completely stopped everything, because anything too active gives me the big V. The therapist mentioned that maybe part of the insomnia problem which I agree. This is like a chicken and an egg situation. I have to get back my health before I can do anything. If I can't do anything I can't get back my health...sigh. Now I am reduce to relaxation therapy, which is a very long learning curve, but I am trying. I do go out for walks about 40 minutes a day. However that is not quite the replacement in what I use to do.

I am always open to suggestions.