First off...I think its amazing that people who have had success with the labyrinthectomy surgery still come on to this support group to help others. They could easily be out forgetting about this nightmare but it is so cool they try to help others.
That being said I was thinking of asking 10 quick questions to anyone who has ever had a labyrinthectomy. I thought this this thread could be looked at for years to come for people who are on the fence about the procedure.
**Please only respond to this thread if you have had a labyrinthectomy (to keep it clean and easy to read):
1. How old were you when you had the procedure?
2. How long did you have MM before you made the decision?
3. How bad was your hearing in the MM ear?
4. How often (per month/week) were you having vertigo...or was it just constant dizziness?
5. What procedures had you tried (steroids/shunts/gentamicin)?
6. How was/is your hearing in the other "good" ear? Did you have any symptoms?
7. How long did it take you to recover (weeks/months) from the surgery?
8. Are you doing anything proactively to prevent MM form going to bi-lateral? (supplements, anti-virals, diet)
9. Do you now drink alcohol, eat pizza, and enjoy food like you used too (is your life back to "normal")?
10. Do you wear any hearing devices (cross-over hearing aids, baja hearing aid, cochlear implant) if not how is life with one ear?
11. Final thoughts - feel free to offer any other things we should know...Good/Bad - let us know what the surgeons may not tell us.
You are doing all of us a great service by spending a few minutes on this.
Than you so much for your help
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